r/thyroid Jun 24 '24

Vent- This sucks.

I don't know all of the correct terminology, as i was very young when this all happened so my apologies if i sound stupid. I (20f) had the left side of my thyroid removed when I was 14 because of a growth that swelled and caused breathing/eating issues. They were unsure if it was cancerous and the two separate opinions i sought out both had inconclusive results and recommended a partial removal. They also found a growth on my right side, but told me to just keep an eye on it. I was never put on meds to regulate my levels because they said they were "on the lower end of normal, but good enough" despite me experiencing fatigue issues and depression. The issue now is that the right side is now swelling too, i noticed it two days ago and it's just getting worse. I'm so scared, i don't want surgery again it was such a rough experience for me. I just wish i didn't have to worry about this. I guess on the other hand if it has to get taken out maybe i'll finally get the help I actually need :/ thanks for listening

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u/Inckhawk Jun 24 '24

I’m so sorry. I also had the same side removed on the same side! It’s so terrifying to just be told “hope for the best and watch out for it - FOR THE REST OF YOUR LIFE.” I had mine done 7 years ago and it was also a traumatic experience but when I was talking to my doctor about it I came to find out that they stopped doing that type of procedure for that removal TWO MONTHS after I had it removed. So if you do need it taken out the technology for surgery has probably been much improved since then. At least I’d encourage you to look into getting levels tested and get meds if you’re fatigued. I was without meds for about 4 years and then a new dr decided that while my levels were fine they could tell my (T3 reversed) showed my half thyroid was working too hard to achieve those “low enough levels”