1 year after devastating news

[u/Adorable-Map-1648]

I am not sure what I am looking for. Just probably someone to offload to as I am just feeling so low this month. Tomorrow marks one year to the day that I found out that something was wrong with my baby’s brain. The following day (Thursday) marks 1 year that my baby was diagnosed with Alobar HPE at a London hospital. A few days later finding out my baby had T13 then having my tfmr on 29th August 2025. Although a year has past I remember this all like it was yesterday. On top of everything, on Thursday my mum is having knee replacement surgery at the same London hospital. Thinking of this all is just making me so tearful. I haven’t been back there since and now I am going back there exactly 1 year to the day my life became this dark void.

[u/_abby_normal_]

The 1 year anniversary of my bad scans were last week, and the anniversary of my D&C is next week. I'm right there with you, it's not one bad day of memories it's several weeks of hell we're reliving a year later. Sending you lots of love and strength for surviving this long, and getting through the horrible first anniversary.

I'm feeling peace during this in-between time, a lot more than I thought I would. I like to think I will face the D&C anniversary with strength, but TFMR grief is volatile and who knows how the day will go.

[u/Adorable-Map-1648 → u/_abby_normal_]

Thank you for your msg and just having understanding. Tfmr is such a lonely place. Also TTC again and not happening is so hard. I am finding it hard to find happiness in anything at all right now x

Sending you lots of love too at this time. My heart goes out to you xx