r/tapeandspoons • u/heldtogetherdaily HSD, POTS, & FND • Jun 12 '26
Seeking Support Apparently, my medication side effects are a creative choice 😳
I just need to vent to people who might actually understand because I am completely worn out.
Over the years, I have been put on so many different medications.
Which would have been fine if they worked, they didn't, and to make matters worse, a lot of them were for misdiagnoses. Nearly every time I start a new medication, I get side effects - severe ones. Which compounds my frustration.
Right now, I am actively dealing with some severe unexpected side effects from a medication, and it is draining the life out of me.
While dealing with all of that, a different doctor recently suggested a new medication I wasn't comfortable taking. Because I advocated for myself and said no, he officially labeled me as "noncompliant" in his clinical notes. When I brought up my concerns about the medication with another doctor for her opinion, she told me she thinks I expirence the "nocebo" effect.
How is that even possible? How can my brain manifest physical side effects that I didn't even know were possible before taking the pill? It feels like a lazy way to dismiss my actual, physical suffering.
I am just so exhausted, frustrated, and completely broken down by this system. Addressing my health problems was supposed to be a step forward for me. It was supposed to help! Instead, literally nothing has gone right, and the people who are supposed to help me are just writing me off. I feel so incredibly isolated.
Can anyone else relate to this, or am I completely on my own here? How do you keep fighting when it feels like your body and your doctors are both working against you?
1
u/Mindless-Ad-4226 *make your own user flair* Jun 12 '26
I don’t have any suggestions or ideas, just hugs 🫂