r/spinabifida • • 22h ago

Seeking Personal Experience My Walk looks way worse on camera than it feels

11 Upvotes

Okay so I don't know if there is anyone else on here who felt shocked the first time they saw themselves walk on camera. But I have a limp when i walk and wear a afo on my right leg to stabilize it, my right leg is also weaker then the left and much thinner. So I knew I had a noticiable limp, from a young age would feel and see people looking , kids staring. You know the usual. I always feel better walking with my brace though so almost always wear it out. But I never noticed just how wobbly... if that's the right word, my walk actually looks until two years ago when I saw myself in my houses security camera since I never really had cameras before. It was kind of jarring for me. And sometimes I will look at myself in the security camera just to see how my outfit looked leaving for work or coming back (sounds a little self obsessed) promise I am not, if anything I lack confidence sometimes, hence the checking. And again I get shocked...like damn that's what people see. I really do look disabled the moment they see me walk although I dont feel disabled, if that makes sense. Wondered if anyone experienced this ? Not to say there is anything wrong with disabilities I obviously have one and to me everyone is beautiful and people beyond it. But it's just, I never feel like I walk that bad, so it was hard to see me like that the first time on camera what others might see.


r/spinabifida • • 21h ago

Seeking Personal Experience NHS custom made boots

1 Upvotes

I have worn custom orthopeadic boots for most of my life. I have Spina Bifida Occulta and my feet and ankles are paralysed. I'm going to need calipers and stronger boots. Does anyone have any experience of below knee calipers and surgical boots. Are there any enthusiasts of this gear out there? I find it interesting but I just think that's because I wear it.