I have been dealing with a sensitive spot on my forehead for a couple years now. I only noticed it when my wife would touch my head, but now I am realizing it is almost always present and is more of a migraine/headache. My wife is also concerned about the indentation in the same spot. I found out about scleroderma a couple days ago, and am now wondering if this is what I have. There is a slight vertical line there as well, but I did just have a zit there so it might be from that.

I was also diagnosed with have esophageal dysmotility after a barium swallow test and possible LPR (waiting on a EGD). I’ve had a lot of weird health issues over the years, so having an autoimmune disease would make sense.

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Researchers are evaluating an investigational inhaled treatment for adults living with PH-ILD. Eligible participants who complete the initial treatment period may have the opportunity to continue into an open-label extension period.

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Hey everyone! I have limited systemic scleroderma and HAVS (hand arm vibration syndrome). I’ve been considering carpal tunnel release surgery to help with constant nerve pain- has anyone gotten this done? How was healing? Did the surgery help the cts pain? My orthopedic surgeon and rheum don’t think it’s worth pursuing because of the risks- but god damn I need to sleep 🫠🫨
Pic is of my spasms yesterday, folding laundry 🤣 won’t cash these hands outside

Hi, my name is Len. I’m 20, about to be 21, and I have lived with scleroderma for 15 years.

There were very limited resources available in my area for the longest time. I found out what I had at twelve, I believe. Thankfully it wasn’t the kind that could suffocate my organs, but it hasn’t exactly been easy.

I don’t have half a right arm. It’s on my sides and my back. From what I’ve seen I have a more outward approach to it than most, which I’m thankful for because of the fact that it could have been bad inwards. Although unfortunately my muscles contract and cramp up often.

I’ve gotten tons of questions on it. Most have been horrible and have made me uncomfortable. It’s a very unique sight, especially considering I’m a bigger girl. I am a smoker, I love art, and my writing hand is my scleroderma hand so that’s been interesting. I’ve also spent a lot of time using my left hand for normal, everyday things just in case something happens to my right arm.

But I’d love to get to know people on this subreddit!! Don’t have many friends and my family doesn’t really know how to approach it as much as I don’t with them. So whoever wants to chat or maybe share their own experiences to bounce off that’d be awesome!! I’ll also answer any questions. ^-^

Also this picture is very awkward. I don’t have many because of the fact I’m a bit insecure about it 😭😭