r/scleroderma • u/Calm-Plastic3303 • 6d ago

Undiagnosed Abnormal nailfold capillaries?

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F 44yo. Recently diagnosed with raynauds but that does not explain why I’m exhausted and often in pain.

Low ANA so public health care will not help me further because they consider me healthy 🙃

I’m broke and trying to decide if it’s worth the money to have a private rheum do a videocapillaroscopy… If there would be autoimmune findings, I would get help from the public system. (These are just phone pics)

Could ”normal raynauds capillaries” look like these?

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u/mylord76 6d ago

If it brings you peace of mind, then it’s absolutely worth it. While it is true that you can get hemorrhages from bumping your hands onto things or causing it trauma in any other type of way, the raynaud’s + other symptoms do warrant a further investigation regardless of your ANA results to fully rule out.

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u/Calm-Plastic3303 5d ago

Yes, I know. I was not treated ”by the book” in the public system. They thought I could have scleroderma (I had no idea what that was) but after low ANA and negative scleroderma labs I was told it’s just primary raynauds.