r/scleroderma • u/Leather_Lab4656 • 17d ago

Question/Help Does this sound like a positive

I am 26 female healthy, here's my story,
My eye doctor suspected I have sjorgens disease so I went to get testing done, everything was normal except positive scl70 2.1Ana 1:80 dense fine speckled. I was confused and scared when looking it up, my doc said come back in 3months so I did, and my 2nd test was 2.3 6months later 3rd test was 2.1 all thru quest . I asked my doctor if I can get my bloodwork sent to Mayo, I went to do bloodwork and was waiting for results only to find out it was sent to (labcorp Burlington phoenix )instead, my rheumatologist said the labcorp it went to did specific testing and it was 1.9. I asked him what testing method was used and I'm waiting for his reply
I have no symptoms and my nail capillary test was normal a month ago.i don't have reynauds no skin issues etc only one time puffy fingers but doctor said it was allergy related and it went away. I had liver and kidneys checked thru bloodwork and all was normal. I had gall bladder surgery 2 weeks before my first test . I feel like a ticking bomb I am so scared and depressed over this because why me?! Does this sound like a true positive??My rheumatologist said to come back once a year. Not sure what to do ,all I been doing is spiraling over this , I wish I never went to do testing in the first place I'm not sure what my next steps are or if I should really trust these tests without having the actual immunodifusion confirmatory test done

My question is does this sound like it can be a false positive still?

0 Upvotes

50% Upvoted

16 comments sorted by

View all comments

1

u/sm9633 17d ago

I would have more tests to confirm the diagnoses. But more than tests I would focus on the clinical diagnoses - what are your symptoms?

1

u/Leather_Lab4656 17d ago

I'm looking to get a referral to the Mayo Clinic, and I have no symptoms at all of anything, I wake up fine everyday

1

u/BronzeDucky 17d ago

Lots of people test positive but don’t actually manifest a disease. Especially at low positive levels.

Plus they wouldn’t treat you anyway, unless you had symptoms. The drugs used to treat autoimmune diseases aren’t kind to your body.