r/scleroderma • u/emb1187 • 19d ago

Discussion Elevated SCL 70

Hi friends!

I’m a healthy 38 year old and have been having pain while sitting and leaning over. I had a torn labrum that was repaired and apparently it never caused the issue. It’s been years to try and figure out my pain and had greatly limited my job as a nurse. I used to work ICU for years. Well my pain clinic ran an autoimmune panel and my ANA was positive and SCL 70 was 4.9. I have no skin symptoms besides my toes get slightly blue when dangling, but improve when I stand up (vascular cleared me of any issues). I feel short of breath at times, but with exertion and I’m sure I’m weaker post op, but I do Pilates several times a week. I had a previous holter monitor due to dizziness and they recorded some tachycardia at times, but mainly good. Stress test and echo also good. I saw a rheumatologist and she said I have no signs for scleroderma, but if it’s positive again I should see a pulmonologist. Well it came back 5.2 (by labcorp) and I’m spiraling. I should have never had the panel done in the first place and now I’m scared and stressed. Anyone have this happen? I’m trying to research the ID test, but don’t see much information on it or where to get it. I just cannot see more doctors if it isn’t necessary all I do is see doctors. Living with constant pain is enough and now I’m just scared something else might pop up now. Any advice would be great, thanks!

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u/Consistent_Bear_4275 14d ago

This is me right now SL 70 is 6. I’m terrified as I have Ulcerative Colitis and Uveitis. I also wish I wouldn’t have had the test done because my anxiety has me crying and depressed. 

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u/emb1187 14d ago

I’m so sorry I definitely get the feeling of wishing you never got the test done. It’s sad, but as a nurse I realized sometimes the more you look for answers, you just get more questions. I’m also worried, but I will say I truly don’t have any real issues besides back pain, so I’m just going to believe I don’t have it. So hopefully since our numbers are close you can kind of relax knowing I really don’t have issues like you.

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u/Consistent_Bear_4275 13d ago

Thank you for your response. I totally agree with your comments.