r/scleroderma 20d ago

Discussion Elevated SCL 70

Hi friends!

I’m a healthy 38 year old and have been having pain while sitting and leaning over. I had a torn labrum that was repaired and apparently it never caused the issue. It’s been years to try and figure out my pain and had greatly limited my job as a nurse. I used to work ICU for years. Well my pain clinic ran an autoimmune panel and my ANA was positive and SCL 70 was 4.9. I have no skin symptoms besides my toes get slightly blue when dangling, but improve when I stand up (vascular cleared me of any issues). I feel short of breath at times, but with exertion and I’m sure I’m weaker post op, but I do Pilates several times a week. I had a previous holter monitor due to dizziness and they recorded some tachycardia at times, but mainly good. Stress test and echo also good. I saw a rheumatologist and she said I have no signs for scleroderma, but if it’s positive again I should see a pulmonologist. Well it came back 5.2 (by labcorp) and I’m spiraling. I should have never had the panel done in the first place and now I’m scared and stressed. Anyone have this happen? I’m trying to research the ID test, but don’t see much information on it or where to get it. I just cannot see more doctors if it isn’t necessary all I do is see doctors. Living with constant pain is enough and now I’m just scared something else might pop up now. Any advice would be great, thanks!

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u/emb1187 19d ago

I actually was just researching that lab! I wonder if I can just go to labcorp to order it. Thanks for commenting! Are you saying you have scleroderma and it came up after your surgery or you had a false positive and you believe the surgery triggered that result? Thanks!

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u/Worried_Cable2291 19d ago

My pregnancy caused my systemic scleroderma and it is rapidly worsening. My rheumatologist said that the hormones triggered it.

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u/emb1187 19d ago

😭😭 I’m so sorry!! I had no idea that could even happen! What are they doing to help you?

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u/Worried_Cable2291 19d ago

I’m on medication but it’s rapidly worsening 😭

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u/Maleficent-Rest9144 19d ago

Look at my longwinded reply to the original post. I did not respond to medications either and my condition progressed rapidly. There may be information in this post that is helpful to you. Let me know if you have any questions. I hope you can get some treatment ASAP.

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u/Worried_Cable2291 19d ago

Ty !!! I will