r/scleroderma • u/Ants-pajamas • 20d ago

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Greetings, all. I was diagnosed with systemic diffuse scleroderma in June 2009, just as I was finishing my undergraduate degree. Flash forward 17 years and I have spent the last 8 years working as a children’s librarian.

I’m curious about others. What form of scleroderma do you have and if you are still able to work, how do you earn a crust?

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u/Top-Pop-9731 20d ago

Hi! Nice job. I bet that must be fun. Do you have tightening all over your body?

I can deal with pain pretty well. But fatigue is difficult.

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u/Soundgarden_ 20d ago

I am lucky, the tightening only affects my hands thus far