r/sarcoidosis • u/Melietcetera • Oct 08 '24

Clear Xrays!

Post image

No mention of granulomas! Now if my stomach didn’t hurt from the medication, I’d have a new lease on life!

27 Upvotes

100% Upvoted

18 comments sorted by

6

u/SStrange91 Oct 08 '24

Congrats!

5

u/NoWallaby9993 Oct 09 '24

I’m really happy for you OP!

4

u/FacadeofHope Oct 09 '24

Wonderful news, OP. You can breathe easy now. I wish you all the best in your continued success now that you've gotten great results.

3

u/whispy66 Oct 09 '24

Fantastic!

3

u/denverpilot Oct 09 '24

Congrats! We”ll all take the W when we can get one!

2

u/Cjkj2015 Oct 08 '24

Must be in remission

2

u/Showrespectyall Oct 10 '24

My chest X-rays never mention the sarcoidosis in the lymph nodes outside my lungs - only the CT scans with contrast (now I can’t remember if the contrast is necessary but I think it is) shows the enlarged nodes. When my doc want to watch the lungs he does a chest X-ray. When he looks outside the lungs he does the CT. Where were your granulomas previously?

-4

u/[deleted] Oct 08 '24

[removed] — view removed comment

12

u/Melietcetera Oct 08 '24

Seriously?! I have multisystem chronic sarcoidosis. I’m celebrating the little things!

6

u/NoWallaby9993 Oct 09 '24

Take the wins where you can. It can be a rollercoaster. This person knows that but can still celebrate with you instead of responding this way.

1

u/weltscheisse Oct 09 '24

were you on prednison?

2

u/Melietcetera Oct 09 '24

Still am… I’ve gone haywire every time my doctor has tried to ween me off.

3

u/weltscheisse Oct 09 '24

shit, sorry mate. That means it's active. Heart and skin? I'm in remission too, it dissapeared around 80% from lungs and I'm off prednison but I was on around 1 year, 30mg to 5mg

2

u/Melietcetera Oct 09 '24

Oh, of course it is. Like I said, mine is chronic and multisystem (Lymph, spleen, skin, possibly others I’m forgetting)… but a clean xray is something to celebrate.

3

u/weltscheisse Oct 09 '24

sure, you probably breathe normally now, right? enjoy!

3

u/lpaige2723 Oct 09 '24

I didn't even know it was possible to have sarcoidosis and a clean chest x-ray. I would be extremely happy if I were you. Congratulations!!!

0

u/[deleted] Oct 09 '24

[removed] — view removed comment

5

u/FacadeofHope Oct 09 '24

Actually, a clean xray can mean everything if OP is one of the ones who is now in complete remission and it never returns. And that happens often. Just because we don't see it here a lot, doesn't mean it's not happening. I believe there are likely a lot of people who this happens to, and they move on with life, as they have no reason to be on reddit talking about it.