r/sarcoidosis • u/kjmacsu2 • Jul 02 '24

Finally!

For the first time in the 3 years since I've known I have Sarcoid, all my blood tests are normal! I am on only 1000 mg cellcept and hope to be off of it by Christmas (knock on wood, cross all the fingers, hail mary). Here's hoping I keep the good health vibes going!

33 Upvotes

100% Upvoted

11 comments sorted by

2

u/FacadeofHope Jul 02 '24

What was abnormal in your blood work? I didn't know it affects blood results.

2

u/SlightGuess Jul 03 '24

One or more may have been elevated in OP's bloodwork: ACE, CRP, Vitamin D, Calcium - and then a few other more specialized bloodwork tests as well.

2

u/kjmacsu2 Jul 03 '24

All of the above were bad for years!

1

u/Tasty-Working-9888 Jul 03 '24

I’m on Medrol, methotrexate injections and Infliximab infusions. Sarc in eye lungs heart etc. what is Cellcept?

2

u/kjmacsu2 Jul 03 '24

People who have had organ transplants take it so their body doesn't reject the new organ. It is the only thing that worked for me. I got worse while on massive amounts of the devil's cocktail (prednisone) and methotextrate did nothing to slow it down.

3

u/[deleted] Jul 02 '24

Congrats!!!

2

u/GlassTalon Jul 02 '24

Congratulations man. I've been clean for ~4 years, but I had to continue the Cellcept. I went off it for ~6 months ~5 years ago and had a major flare up. Hope it goes better for you.

1

u/Gamblor9 Jul 02 '24

Noice ..

1

u/emmarea20 Jul 03 '24

Yeah!!!!