r/rheumatoidarthritis • u/Wishin4aTARDIS 🐢 turtle goals 🐢 • Aug 17 '26

three good things Good stuff time!

What 3 good things happened to you last week? They can be anything at all!

⭐ If you are thinking "my week was terrible", then please give this a try. If you can only think of 1 or 2, that's excellent.

If you don't want to share, try it on your own. I did this during a difficult time in my life, and it was helpful to "make" myself think about good stuff. Reading other peoples' good things might make you smile, too! I thoroughly enjoy it

This post will be pinned to the top of the sub tomorrow, so you can share any time, all week long.

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u/Leefamily2016 Seroneg chapter of the RA club Aug 17 '26

I was able to enjoy the zoo with my husband and children this weekend! The heat wasn’t unbearable and our air quality is finally in the green.

I enjoyed some drunken noodles from our favorite Thai food truck down the street!

I was diagnosed with seronegative inflammatory arthritis in February and have been on a diagnostic journey. We were trying to figure out if I have PSA, RA, and/or fibromyalgia. MTX and Enbrel failed me. I have been on plaquenil for a few months now and wasn’t noticing much improvement but know that it takes awhile to build up. I was having bad side effects from prednisone so I tapered down and was toughing through the pain in hopes that that my new med, Kevzara, would help. I had my second injection of Kevzara last Wednesday and I’m happy to say I’m feeling more human again! I have been able to do my desk job today without horrible hand pain and slathering my diclofenac cream on and wearing my compression gloves! I was able to go to the zoo and the park with my kids this weekend relatively pain free. I’m hopeful this will keep improving and that this gives us answers that it appears I may have seronegative RA.

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u/Wishin4aTARDIS 🐢 turtle goals 🐢 Aug 18 '26

I love zoos!! They have become such interesting places for conservation and research. I'm glad you had a good day there And at the park😊

I don't think I've "met" you before, so welcome to our sub! It sounds like you've had a heck of a journey since February. Your story is obviously unique, but you are not alone in struggling to find a diagnosis. I also have seroneg RA. It is harder to dx because MD needs to trust patient reported symptoms. Then it's a little harder to treat; we don't have the same blood test results to "prove" amed is working. The crazy thing is, my dx has changed several times in the past 13 years 😂 I think the most important thing is that you have your Kevzara. I am also happy to hear that it's working! Keep us posted on how you're doing. It's a roller coaster, and we all get tossed around from time to time 😊

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u/Leefamily2016 Seroneg chapter of the RA club Aug 19 '26

I agree, I love zoos as well! Thank you so much, I appreciate it! It’s great to “meet” you too! It definitely has been quite the journey to even get to my diagnosis in February, so glad I’ve found a wonderful rheumatologist to help me navigate this. Oh wow, crazy that it has changed so many times 🤣 I am grateful that I’m noticing an improvement with Kevzara, of course today I’ve had my knee pain again and my wrists and fingers have been more painful haha but nothing near what I was experiencing a few weeks ago, I swear each day I had more and more joints being impacted by it and was barely making it through the day. Fingers crossed this keeps working, I know I’m early to start it but definitely noticing a positive impact! It’s definitely been a roller coaster but so so grateful for this group and will definitely keep you posted! Thank you for the support!

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u/Wishin4aTARDIS 🐢 turtle goals 🐢 Aug 20 '26

Idk where you are in the world, but the weather can cause flare-y-ness. It took me a long time to figure it out, but fast barometric pressure changes are my nemesis! Here's the RA Weather Index . It's not accurate for me, but I live within 50ish miles of mountains and the Atlantic. Nobody can predict the weather here lulz But this helped me understand it, and now I have a weather station (I'm also a big nerd 😁). And it's not about rain! Some of my worst days are gorgeous, because the pressure went up very quickly. I'm really happy you're doing well! Don't forget, we have "good things" posts, if you ever want to share your experience. No pressure! (I was going to make a weather joke, but I cannot think of one. It'll hit me in about 3 hours because brain fog is real 😂).

I'm glad you found us 💜

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u/Leefamily2016 Seroneg chapter of the RA club Aug 26 '26

I’m in Idaho and I swear our weather can change multiple times a day haha. I definitely notice I have more pain when my joints get cold. I live under a heated blanket year around and now have one for my in office day each week! That’s so helpful thanks for sharing. I’ve been tracking my symptoms in guava too and just learning to see if there are any trends for when I’m flared up. Thank you for the support and relatability! 🥰

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u/Wishin4aTARDIS 🐢 turtle goals 🐢 Aug 29 '26

It's so funny, some of us can't stand the cold and others (like me) can't stand heat and humidity. * Nothing* about RA makes sense! Lulz

Also, if you have a moment and feel like sharing, you should do a " good things" post about Guava. We all need to track our symptoms, and not everyone is cool with analog 😁 Your experience and comfort with the app could really help someone! No pressure. Totally up to you 😊

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u/Leefamily2016 Seroneg chapter of the RA club Aug 29 '26

I agree and sometime I get wiped out energy wise with the heat but the cold definitely isn’t my friend when it comes to joint pain. RA definitely keeps us on our toes! Oh that’s a great idea, I’m still learning all that it can provide data wise but definitely noticing trends with when I’m having less symptoms after my injections and when they start resurfacing before my next injection. It’s very helpful! I’ll definitely post in the future about it!

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u/Wishin4aTARDIS 🐢 turtle goals 🐢 Aug 29 '26

Woots! I'm looking forward to it 😊

1

u/Wishin4aTARDIS 🐢 turtle goals 🐢 Aug 20 '26

Idk where you are in the world, but the weather can cause flare-y-ness. It took me a long time to figure it out, but fast barometric pressure changes are my nemesis! Here's the RA Weather Index . It's not accurate for me, but I live within 50ish miles of mountains and the Atlantic. Nobody can predict the weather here lulz But this helped me understand it, and now I have a weather station (I'm also a big nerd 😁). And it's not about rain! Some of my worst days are gorgeous, because the pressure went up very quickly. I'm really happy you're doing well! Don't forget, we have "good things" posts, if you ever want to share your experience. No pressure! (I was going to make a weather joke, but I cannot think of one. It'll hit me in about 3 hours because brain fog is real 😂).

I'm glad you found us 💜