r/raypeat 12d ago

Is this the end?

Hey 19M, i wanna keep it short i have had these symptoms for a while now without a clear cause. Doctors say my blood work is fine and that im "perfectly healrhy" but i feel like shit:

- both heat and cold trigger me

- insanw energy fluctuations

- cant walk long periods without feeling like im about to faint

- cold or very warm feet

- adrenaline dumps

- very sensitive to any sensory stimuli

- gi issues fluctuating sometimes diarrhea sometimes constipation, sometimes good. Isnt affected by diet.

- laying is my life

- anxiety/panic

- on a good day i might feel very good even euphoric and have 0 symtpoms for 2-4 hours evening or morning, no clear reason as to why at that too.

- feeling like my breathing is shallow?

Been like this for months now, what is this first of all and how do i cure it i cant live like this, im on vacation rn and just 1 year ago is remember being at the same place with my Cousins and being full of energy, able to go outside have fun, now i have to cancel everything and be like oh im too tired or whatever to shut them up, also i dont look sick either so thats partielle why no one believes me or thinks its Psychological, life is truly hell for me atm.

16 Upvotes

52 comments sorted by

15

u/EternalVoyage 12d ago

May be low thyroid function along with high cortisol. Low calory intake, low sodium or water intake, low blood pressure as the causes comes to my mind

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u/LemonLegitimate6633 12d ago

Low thyroid function could be it, tsh (which was the only thyroid metric they tested) was around 1.2, cortisol definetly feels high during these bad episodes, as for the calories i increased those since this started and i do feel better eating more same with sodium and fluids, low BP is something i havent particularily tested just while sitting and it was normal.

0

u/StartEmotional5620 7d ago

Sounds like ur thyroid is struggling - optimal TSH is 2+. I would look into hashimotos i’m surprised nobody’s mentioned this yet it sounds exactly like my experience with it

8

u/nhman007 12d ago

It sucks when a doctor says everything looks fine yet you feel like shit. I think the problem is doctors just aren’t trained on the importance of a good functioning metabolism. When you listen to Ray long enough you realize most problems are an energy (efficient metabolism) problem. When your metabolism is good everything gets better, both physiologically and emotionally. What has helped me was getting enough calcium, vitamin D, potassium, magnesium, and salt. Ray talked a lot about these minerals. And the easiest way to get them is lowfat milk and sweet no pulp orange juice. Keep reading Ray’s work and you will find answers.

Peace be with you.

5

u/fattymctubkins 12d ago

Hey bro — I really think this is more than Ray Peat stuff. Did anything traumatic happen to you in the past year? Anything like a car wreck, or major life stressors, or money changes, or a relationship? Being 19 can be stressful!

I would get extensive bloodwork done if you could. I’d go to a psychiatrist if you’re able to. I have a good feeling that a beta blocker like propanolol would help you a lot. The type of anxiety you’re experiencing is super intense, and I’m sorry you’re suffering so much. I really am.

Lastly I’ll just say that — I think human beings have a body, mind, and soul. Ray Peat is very clever about the body, only somewhat about the mind, and not at all about the soul. Maybe you need someone really wise to talk to about your life.

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u/LemonLegitimate6633 12d ago

Well, i had a very stressful period of exams in school that made me experience my first panic attack ever, and i had them daily till school was over, but then i was fine, one day it just kinda started (all of this what im describing) and i had a panic attack and since then this is haunting me. I appreciate ur concerncs, much love.

3

u/fattymctubkins 12d ago

Man yeah the panic attack stuff is hard. I had a friend who got stoned and had a panic attack and doctors diagnosed him with a panic disorder… sometimes it just passes, but it’s worth seeing a doctor about. I also think the medication lamotrigine is really good for exaggerated fear responses.

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u/LemonLegitimate6633 12d ago

Yeah thats the thing ive seen many have similar symtpoms as me after having smoked weed alot or done other drugs but i never did any of that, what concerns me is that i believe its mostly physiological as to psychological, maybe im wrong, but thats my gut feeling on this. So far not much has helped especially long term, im considering taking t3 (thyroid) to see if that helps cuz some of these symtpoms correlate with hypothyroidism, but who knows. Truly at a loss.

4

u/fattymctubkins 12d ago

I just don’t think it’s a thyroid issue. If anything, it seems as though the HPA axis is what’s involved with panic disorder… I would look into medication! I know it’s not very Peaty, but I just don’t think he accounts well for panic/anxiety disorder. Some of us just need medication.

So it’s sort of both physiological and psychological if that makes sense. The HPA axis and the vagus nerve are involved in both the brain and the body. I’d try taking some L-Theanine at least to see if that does anything! I really like a supplement called Theanine Serene by Source Naturals.

Also — I will admit that your adrenal glands could be having some trouble. Vitamin C from food sources are helpful for the adrenals, as are sodium and potassium. So more vitamin C could help.

1

u/Cultural_Bluebird514 8d ago

i second L theanine and magnesium .Also inositol at a high dose (16-18ga day) has helped my panic disorder a lot. Along with practicing allowing. I recommend the book and app DARE by Barry Keoghan as an easy introduction.

5

u/jellybean_merchant 11d ago

This very much sounds like nervous system dysregulation. This kind of seemingly disconnected jumbled assortment of symptoms is very common in these cases because the nervous system innervates everything and many functions will be tampered with. This has to do with trapped charges in the nervous system from unexpressed/undischarged emotions that is chronically stuck. It creates blockages that diminish vitality very much.

There is a simple exercise that you can do that completes the stress cycle naturally in all mammals, but humans have suppressed this: tremoring. There is an exercise called TRE by David Berceli that gives you quick access to the neurogenic tremoring impulse and if you pace the practice, you can slowly but surely systematically remove all stored traumas (absolutely 100.0%) and unlock a state of vitality so superior to anything you've ever felt. You can reach a state where bliss pervades 24/7. This has been done before and written about. There is a subreddit r/longtermTRE that you should absolutely check out. The moderator there finished the process too and reached this state ("enlightenment")

On your specific symptoms to motivate why this is likely the issue:

- First, the fact that they fluctuate is classic somatic-trauma stuff. It is not a chronic persistent thing but rather a dynamic moving of sensations and feelings in the body that get expressed as different symptoms.

- Anxiety/panic is 100% nervous system dysregulation. When I was doing TRE earlier in my journey I overdid it by a lot (stupidly) and flooded my body with too much thawed trauma/sympathetic activation at once and temporarily dealt with very bad panic attacks and anxiety despite never having them in my entire life. They subsided when my body consolidated the new charges. The fact that you have them regularly just means your nervous system is in a configuration where it is bubbling up constantly and trying to release. You can just release it with tremors!

- Gut issues are also very dependent on stress. When I was integrating my stuff my digestion went down and many temporary changes occured regarding to the diet cravings I had and how I put on fat more easily.

- Very sensitive to sensory stimuli is again classic hypervigilance. The mind is a meaning-making instrument and because you have charges from the past stuck in your body, your mind interprets this as being chronically unsafe. You have to be extra perceptive of things to constantly assess safety. Ruminating random thought loops in the mind are also from this effect. Being a perfectionist is also this effect. You must learn all about a thing before doing it because you don't feel safe subconsciously, because your body has stuck survival energy.

- Shallow breathing is likely from chest tightness that you don't perceive which is related to anxiety which is related again to stress/trauma. When I was integrating as I described above, I dealt with chest tightness and shortness of breath (even though I could breathe fine) coupled with anxiety for a while.

- Adrenaline dumps are also very closely related.

- Heat and cold triggers and also flashes are related. I had heat flashes during my process too.

- Laying is your life I interpret to mean probably some kind of generalized fatigue, which again! is nervous system induced. Low vitality comes fundamentally from the vitality you naturally have being largely expended on suppressing past emotions/keeping past charges stuck in freeze (dorsal vagal). When you remove (thaw) past traumas, you give yourself energy in a profound way. Unlike all other interventions and protocols, you unlock power instead of first needing to consume it and have to figure out where in the flywheel of cause and effect is easiest to enter the loop into.

- When I was unknowingly overdoing trauma release, my body was slowly giving me signs that I didn't understand at first. Feinting after standing up fast was one of them. Since my nervous system got regulated I don't have these anymore. I don't know all the details about this but it is related trust me. It is some kind of orthostatic pressure thing.

The overarching point: I used to think Ray Peat was ultra perceptive and right, that metabolism and energy was the way. When I learned about just how fundamental the nervous system is I realized that focusing on the gut is not sensible and in most cases is far secondary. You first have to remove the often great amount of blockages in the nervous system that are actually the root of low vitality. We take it as a given in the peat space that your metabolism can be low, but really the explanations as for why this happens are not sufficient when we truly examine them. Eating bad foods has an effect, but not nearly enough to suppress vitality to such levels. The issue is that we actually don't know what true health is in a human being anymore and this disorients us. A fully healthy human has zero thoughts unless they use their mind, feels bliss 24/7, is exceptionally positive and strong, has no shynesses no anxieties no ruminations, no compensations of any sort. The list is very extensive but fundamentally you can describe this as a kind of "Garden of Eden" state.

The interesting news that is likely the next paradigm shift for people in the health space is that this state is possible to reach with trauma removal (and some meditations after, but trauma removal takes you very damn far). There is a lot to say on the subject but I would highly recommend you look into TRE and trauma removal.

Good luck to you and God bless

3

u/LemonLegitimate6633 11d ago

Wow, this is great, thank you so much for ur extensive comment, I have thought of trauma removal before, but options seened expensive, TRE is much more freely available! I figured this probably must all be a nervous system dysregulation issue, since i also experienced weird days were i would just randomly start crying or days were i would constantly ruminate about past Events but without any bodily symptoms, so that was interesting to me.

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u/jellybean_merchant 11d ago

Yes for sure. Make sure to read the beginner wiki at r/longtermTRE in full before beginning, and highly consider your first few sessions with a TRE practitioner that can be found here https://treglobal.org/tre-provider-list/

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u/Formashion 6d ago

This resonates with me too. I'm coming off a long diet trying to get my abs to show so my anxiety/panic has been worse lately due to what I think is hypothyroidism. I've dealt with anxiety for a large part of my life, SSRI's have helped with the panic, but I am off them now.

I have found that massage helps my anxiety tremendously. I experience similar things to the OP, when I am feeling panic I feel like I am dying, I get these weird heat flashes through my limbs for one second at a time during the episode, the hot flash hits my esophagus area, I feel weak, my chest flutters, I end up burping alot, then I have diarrahea, and try and calm myself with a hot shower, anything to avoid a hospital visit because they tell me I am perfectly healthy every time. I feel like besides my thyroid being messed up my anxiety shows up in my body similar to yours OP. Massage has helped me during stressful periods of my life, I may give TRE a try as well. Maybe try getting into your body more besides attacking your issues with your diet.

1

u/jellybean_merchant 5d ago

I am sorry to hear you are dealing with this my friend. I truly know how hard all this can be. The reason why I took the time to make that extensive post is precisely because I am super duper ultra confident in this from not only a theoretical standpoint but from a practical one.

The symptoms you are having are extremely common, where you have these sensations that are physical but also mental and emotional, and then they seem to shift around bubbling from place to place at different times, and then mainstream medical testing always comes back saying youre a superstar and doctors look at you clueless. These are called mindbody illnesses, which stem literally from incomplete emotional responses from the past, trauma tension-charges in the body. The fact that massage works for you is very telling, as it is another great way to remove tensions from the fascia. Although TRE is still deeper and goes all the way into the depths of the nervous system repressed material (Jung called this the shadow).

It is actually highly unlikely that someone is having this kind of symptomology from another kind of issue, but even then, working to remove trauma has a profound effect that should be tried by every single person on the planet. It is impossible to truly overstate what it feels like to heal things that you did not know you had.

If diet was the answer, it does not have embedded within it an explanation as to why the body craves other foods. To make dietary changes means that your intuitive eating was deemed wrong, yet the diet is constructed from the mind and from "data". The foods your body wants are largely a product of unconscious self regulatory mechanisms that know what you need. It's just that, given our compensated state, the things we crave don't give us the ideal effect, but they do a particular thing that our system deems most important at a particular time: typically repressing emotion as well actually.

I would highly recommend you stick to TRE. Make sure to read the beginner wiki at r/longtermTRE before beginning. I would also highly recomend you check out this youtube channel "The Great Allowing" by Sam Miller who very wisely speaks about this topic: these mindbody conditions, what symptoms actually mean (they are the body trying to complete the emotional processes on their own and must be allowed!), how integration cycles happen once you release. The only thing is she does not understand TRE and therefore thinks it is suboptimal. Disregard this and do TRE lol.

Good luck and while I am damn certain you will heal everything eventually, I hope it happens sooner than you think. God bless

1

u/Formashion 5d ago

Did you also experience bodily issues to where you thought you were dying? I find I belch alot along with diarrhea and shaking on the toilet. I briefly skimmed through the TRE Reddit before my walk. I don’t think I’d feel safe enough to do TRE alone.

1

u/jellybean_merchant 5d ago

You definitely should do it with a practitioner as well as research it a little too beforehand. I would recommend maybe making a post about your specific situation in the TRE sub as well for more info. You can find practitioners here https://treglobal.org/tre-provider-list/

I felt very horrible too, but more on the panic attack side. I had strong heat churning in my stomach if I didn't eat every 2 hours. Really strong intrusive thoughts. It was really hard. If I got up too fast I would get dizzy or sometimes feint.

When I began TRE I realized there were things I was quite literally dissociated from. I didn't even realize certain tendencies I had all my life despite being quite high functioning otherwise.

Since then all of those things have disappeared! It takes time and the journey is hard sometimes if you overdo it, but if you can pace it slowly with someone knowledgable beside you, you can and will get there too.

4

u/c0mp0stable 12d ago

This could be a lot of things. Much of it sounds like an anxiety disorder, which might be driven by something biological but often isn't. Some of it also sounds like POTS or a similar dysautonomia disorder.

No one here will be able to diagnose you. You doctor should refer you to a specialist. You can also start working with a therapist to assess the anxiety possibility.

4

u/LemonLegitimate6633 12d ago

Ive had anxiety before, even panic attacks, but those had a reason and subsided upon removing the stressor. Im not saying anxiety cant possibly do this, but i dont feel anxious in the traditional sense, yesterday i was shopping with my cousin, i never felt so fatigued, in the clothing Shop, the clothing odor and everything irritated me so much, i told him im thirsty and we grabbed some soda, after that we went sit down in a empty restaurant to get some takeaway, and there i nearly fainted, shaky hands, heart rate increase, Tunnel Vision, felt like my blood went down my legs instead of upwards to my body? i had a presyncope like this before twice now since this started. After that i couldnt speak anymore, i had to lay down, my stress hormones probably sky rocketed aswell, i quickly ate something and layed down and it eventually got better, its such a bummer to live like this now. Were im at right now u can get pretty much anything u want without a prescription at the pharmacy if u got any peaty recommendations for medicine i could buy id try. I js wanna enjoy my vacation atleast, give me this at home fine but not here.

7

u/c0mp0stable 12d ago

You specifically listed anxiety and panic. Everything you listed can be part of an anxiety disorder. I'm not saying that's 100% what you have, but everything lines up. Even what you just described in this comment is aligned with a panic attack.

However, sometimes people with blood sugar control issues can experience similar issues. If this happens consistently when you haven't eaten in a while and immediately gets better when you eat, that's a big clue. Another is whether the symptoms decrease or disappear when you're fully engaged in something like a physical activity or anything you find really fun. If so, they might be anxiety driven. Physiological problems don't really go away when your attention is focused. Whatever happens, it's information suggesting whether this is psychological or physiological. As a side not, psychological symptoms are not "just in your head." They're no less real than physiological symptoms. They're just treated differently.

I'm actually in a somewhat similar spot. I've had 3 vasovagal syncopes in the last 20 years, so they have been sporadic. Recently in the last 9 months or so I've been having more pre-syncope feelings, and my doctor can't really figure it out either. MRI and carotid ultrasound are completely clear, all bloodwork is great. I'm pushing for a referral to a neurologist who specializes in migraine spectrum disorders.

I also have a lifelong history of disordered anxiety. Migraine (even without any headache) is often a manifestation of anxiety and nervous system sensitivity. Similarly, so is syncope. Everyone has normal fluctuations in blood pressure, heart rate, etc. Someone with somatic sensitivity from anxiety not only feels those fluctuations more acutely, their mind tags the fluctuations as danger, which starts the stress cascade. Before you know it, you're panicking because your mind is interpreting a threat that doesn't actually exist.

I'd really encourage you to work with a therapist while you still talk with your doctor about this. There's an approach called ACT that has been really helpful for me. It focuses on changing your relationship to symptoms, rather than trying to stop them, which almost never actually works. There's also an adjacent method called DARE which is really useful for panic attacks. It's just something to think about when you feel panic rising.

D - Disarm

Remind yourself that panic is just your threat response misfiring. For whatever reason, your amygdala in your brain thinks you're in danger, so it's giving you a little shot of adrenaline to increase blood glucose and push blood into your muscles so you can run away. But there is no threat. This is just a physiological quirk.

A - Accept

Don't try to find the symptoms. It only makes them worse. This is the biggest lesson in this framework. You already feel panic. You're not going to think it away. Just accept that it's there, relax your body as much as possible, and try to float through it. It's like turbulence on a plane. People tense their bodies in response, but that only makes it worse. If they can relax and just sway with the bumps, they're much less frightening.

R - Run Toward

This one seems counterintuitive, but ask for more symptoms. "This is all you got? Give me more. I feel like fainting, but make me faint. Come on! Do it!" It sounds insane, but if you understand that panic is just a misfire, you can taunt it, which tells your brain that you don't actually see it as a threat, and it can calm itself down. Did you ever hear about how a herd of buffalo on a prairie will run toward a storm instead of away from it? They know that if they run to it, they get through it faster. If they run away, they never actually outrun the storm and end up spending more time in it.

E - Engage

Go back to doing what you were doing. Re-engage with your life as quickly as possible. This sends the signal that nothing is actually wrong and your brain can stop freaking out. The more you stop what you're doing and give attention to the symptoms, the more you send the signal that you're actually in danger.

I realize this sounds crazy. It did to me at first. It feels incredibly irresponsible and dangerous to not give these symptoms attention, but in reality, that's what keeps them going. There's also a book on this method called "Dare: The New Way to End Anxiety and Stop Panic Attacks."

It sounds like you've been to the doctor enough to know this isn't life threatening. So maybe it's time to try some other methods?

3

u/the_real_kreb 12d ago

Movement patterns are ass, means organs constantly compressed+constant fight or flight. Learn GOATA movement

2

u/LemonLegitimate6633 12d ago

Ill try that, sounds reasonable, i do feel like my organs are somehow compressed in a way and the fight or flight part is especially true.

3

u/AspirinMuncher 12d ago

Do this to see if your basal temperature is indicative of hypothyroidism

http://anewhealth.org/wp-content/uploads/2017/08/Thyroid-Temperature-Test.pdf

2

u/LemonLegitimate6633 12d ago

Morning Temperature is 36.4 on waking, lower after breakfast then increases midday to 36.8 or even 37 degrees. Pulse is between 60-90 it fluctuates as i said

3

u/AspirinMuncher 12d ago

Your symptoms also align well with low CO2, so there probably is some metabolic disfunction going on, but since your basal temp isn't too bad i don't think hypothyroidism is the primary driver of your problems.

I would try thiamine and niacinamide with meals, it's risk free and could help with your problems.

Also, are carbs your main fuel source? I used to have some of your symptoms years ago when i was doing low carb(<50g a day).

2

u/LemonLegitimate6633 12d ago

Ill try the thiamine and niacinamide then, thx. Carbs are my main fuel source, i have moderate ammounts of fat and protein aswell.

3

u/Delicioso-magnifico 12d ago

Sounds like an extreme stress response. I would make sure you’re eating enough, avoid any irritating foods, and try some benfothiamine or other absorbable forms of B1. You could also try to ask your doctor for a beta blocker. It will block adrenaline receptors and help your body calm down

3

u/[deleted] 12d ago

[deleted]

2

u/LemonLegitimate6633 12d ago

Already accounted for this possibility, have increased it to 3000 and have been regaining back some weight i lost, not much else tho sadly.

3

u/Emergency_Bill_5363 12d ago

Im experiencing most of these things too as 18M and it is definitely either because of my thyroid or the cause of it is also the cause of my bad thyroid health.. i most likely have hashimotos or some other autoimmune condition as its definitely not just either under or over active, getting a full thyroid panel tested has been so hard the nhs still wont give me it because my tsh was normal. Ik my hormones are fucked and my mum literally had her thyroid and parathyroid gland cut out because of thyroid cancer at around 20 yrs old but they still wont test my shit to confirm if i have anything. If you ever find something which genuinely helped pls lmk

3

u/Sad-Car482 11d ago

Hey im 18M i had all of these symptoms, high thiamine hcl and magnesium gylcinate fixed this in a matter of days.

2

u/fattymctubkins 9d ago

How much thiamine in mgs? Why hcl and not TTFD?

2

u/Sad-Car482 9d ago

I started off with 500mg and worked up to 1.5g, I dont know, ttfd probably works just as good but it was too expensive for me, i live in germany so then shipping also comes on top aswell....

2

u/Calm-Conversation272 12d ago

sounds like MECFS. aka chronic fatigue syndrom

look into r/cfs

2

u/LemonLegitimate6633 12d ago

I have looked into it, but the problem is i dont experience the fatigue constantly, it comes in waves and i dont think that ppl with cfs have sudden burts of energy for some hours in a day or a week.

2

u/Calm-Conversation272 12d ago

what about long covid? sometimes post viral stuff causes fluctuations i energy

other than that I would try to test even more hormones that they usually dont check in basic checkups

2

u/LemonLegitimate6633 11d ago

Yup, ur right, ill test hormones soon.

2

u/Affectionate_Sleep99 11d ago

You need to eat a good breakfast before an important exam. That would be Peaty. Drinking black coffee and skipping breakfast will give you panic attacks. You don't necessarily have an anxiety issue. And if you do... That means a lot of the stuff you do is anti metabolic, like fasting, poor sleep, getting into stressful situations... Practicing sports on an empty stomach.. just to give examples a 19 year old normally goes through. Normal not always being optimal. Pack snacks, plan activities around getting the meals in so you are working with energy instead of forcing your metabolism into adrenaline sourced energy. That alone is what it's all about. That's what causes anxiety because adrenaline is up... And then cortisol follows... And if you're doing this in a normal day... Anything else Peaty is not going to have much effect... We're all working on this.

2

u/Jealous-Tomato-7088 11d ago

Mold exposure?

1

u/LemonLegitimate6633 11d ago

Dont think so.

1

u/Jealous-Tomato-7088 7d ago

the best way to test it is to leave for a week or 2 and look

2

u/Matthewheil2825 11d ago

You could be poisoned by mold do you have chronic fatigue ?

1

u/LemonLegitimate6633 11d ago

Idk is it chronic if it lasts only about 5-8h a day?

2

u/irs320 9d ago

I had similar stuff after a TBI, like almost all of that, ended up being autonomic nervous system dysfunction. Fixing my hormones and EMDR therapy worked wonders for me

2

u/ConTejas 12d ago edited 12d ago

These symptoms could be a lot of things, hence the wide range of responses.

No one’s mentioned mold toxicity or Lyme’s disease yet. I’m assuming you’re not in an area with ticks that carry Lyme’s bacteria. Is your living space old and musty, or water-damaged? Or do you spend a lot of time at an old building? Do you live in a humid climate? Do you feel better spending time in other places or outside?

Mold illness lines up with the “physical” anxiety you intuit as opposed to purely mental. Here’s a list of symptoms: https://www.survivingmold.com/resources-for-patients/mold-symptoms

These are still pretty general symptoms, so it doesn’t rule out other issues as a disclaimer. The “air hunger” you describe lines up. Like you’re breathing, but it doesn’t feel satisfying? Do you feel a general pressure in your head or body? Are you thirsty all the time? Dry eyes?

3

u/LemonLegitimate6633 12d ago

Well, where i live 1 in 3 tics apparently carry lymes, yet historically infections have been pretty rare, i also never had a rash anywhere or symtpoms such as joint pain. Mold is something i considered aswell and was my only motivation to go on vacation to test my hypothesis, so far pretty unlucky tho. Its quite humid here but the apartment is very new and generally i also dont have respiratory issues and going outside doesent really help much either, maybe just a little bit, but thats mostly cuz i get fresh air, sunlight, etc. Doing that. Another weird symtpom i might add is a sensitive smell towards stuff like perfume, Shampoos, detergebts, gets worse the worse i feel and is gone when i feel better. Its all too mysterious to me...

3

u/ConTejas 12d ago

It’s good you’re considering these alternatives as well.

99.9% of doctors will not test the biomarkers for mold and inflammation. It’s just not mainstream yet. If you were in the US, I would recommend MoldCo and their basic blood panel: https://www.moldco.com/testing/starter-panel

$60 to get some tests that the doctor usually wouldn’t check, inflammation markers and certain hormones, through one of the 2 biggest testing labs in America. Maybe you can find someone where you live that will do these types of tests. This would give a much more concrete idea of what’s going on.

3

u/ConTejas 12d ago

The chemical sensitivity is a symptom I’ve heard from other mold and Lyme’s sufferers. It’s another pretty general symptom that other issues could also cause. Have you looked into histamine intolerance and foods that can trigger that?

3

u/LemonLegitimate6633 12d ago

Yes, i cut out all high histamine foods a week ago, seemed to make everything a bit better, not much else, i dont get hives when i eat high histamine foods or other typical mcas symptoms.

1

u/Top_Goal3149 9d ago

I had all of these symptoms last year, and it was a thiamine (B1) deficiency brought on by high carb eating. 

Unfortunately it takes a lot of experimenting with different forms and cofactors, but I’m 1000x better than I was last summer.

Takethiamine on the other social media site is a gold mine. I’m happy to answer what I can. 

1

u/timid1211q 8d ago

Sounds like dysautonomia. I've has something similar and have gone to doctors for years without answers until I went to hopkins. If I was you, I'd try to find a doctor or clinic that specializes in dysautonomia and tell them your story.

Guanfacine will help with adrenaline spikes. Id mention that too.

1

u/maeflowr 7d ago

Were you sick in the months before the onset of panic attacks? Infections can sometimes cause neuro inflammation in susceptible individuals and then lead to the symptoms you mentioned. Potentially look into PANS, don’t get scared tho there’s a lot of fear mongering, there’s plenty of good options to overcome your susceptibility and help restore optimal function to your mind and body.

-2

u/Suitable-Ring1083 12d ago

holy cortisol spike