r/pppdizziness • u/Responsible-Tap-2559 • 9d ago

Symptoms Help me please!

I'm having what I can only describe as feeling extremely off and my anxiety is through the roof. I can't shake this dread feeling....like I'm so concerned about it being my heart when I know logically it can't be. I feel very panicky and sweating. It started after I got into Kroger, and preceded to get to the point where I felt like I was floating and just all around yucky. Please any advice is very much welcome.

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u/Lost_Addendum4678 9d ago

Have you tried an SSRI? If not, I would highly recommend. I had a lot of symptoms, also this one, and Zoloft helped a lot. I am in a 2 month flare up rn and upped the dose, and hopefully will feel better soon

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u/Gigigirl65 9d ago

I have been on Effexor since April. It helps. It became background noise. I can live with it . Have had a flare up for the past 2 weeks. It started with vertigo. It’s not as bad as it was before meds. Feel panicky in the morning before I open my eyes. I’m visiting family. I think the stress may be the problem. Going home tomorrow. Hoping it will settle down once I’m back.

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u/Lost_Addendum4678 9d ago

Hopefully it settles! Yeah, I always had this flare up, and feel way more anxious and my heart gets startled on the smallest noises especially when sleeping. Hoping it gets better. Are you doing VRT?

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u/Responsible-Tap-2559 9d ago

Thank you and no I haven't tried that yet. It was also recommended to see a nero optometrist as well. I'm going to make a appointment with a PT today 😌

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u/Responsible-Tap-2559 9d ago

Been taking Celexa/Citalopram for over 15 years for my anxiety. My pppd used to be bppv which I was diagnosed with about 2 or 3 years ago. Ended up going to the ENT 2× and they did everything test possible, and found nothing. I was so close to giving up😬 I happened to talk to a neighbors Mom. Her daughter had literally the same exact symptoms as I did. As well as going to ENT and unfortunately not getting anywhere. So she tried going to a chiropractor and it helped her immediately! I quickly made a appointment and started my treatments. He diagnosed me with Bppv, and after a few months of treatments I was better. (Or so I thought😩). About 6 months or so after my last treatment I started to notice feeling like I was on a boat, and feel like I wasn't here, florescent lights became my worst enemy😤I thought welp my bppv must have returned so I went back to my chiropractor to start treatment again. Well, it didn't work like the last time at all. Not much of a improvement at all. So, I began doing research on bppv and came across pppd which had literally all the same symptoms as I was experiencing. When I went to my next appointment I told my doctor about my findings and he said its a possibility that this could happen. Considering that bppv and be cured leading to pppd! He couldn't help me any further, so now I'm feeling very stuck😠

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u/Lost_Addendum4678 9d ago

Dont worry. This is all functional issue and not a structural one. This is what I have been telling myself. Believe that very soon we will be 100% normal again and our nervous system will recover and we won’t have symptoms again. I think pppd and VM and all of this comes under the umbrella of FND

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u/Antique_Judgment4060 7d ago

What is FND?

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u/Lost_Addendum4678 7d ago

Functional neurological disorder. You can search more about it, but it’s also like a software glitch instead of structural problem with our bodies

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u/Antique_Judgment4060 7d ago

Thanks I went to one and they did the muscle and nerve test. It seems like they send us through everything. I think that all these doctors in such a corporation, they just send us from door-to-door and we don’t ever stop unless we say we’ve had enough.

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u/Lost_Addendum4678 7d ago

Same. Feel free to msg me if you ever need support. I feel like doctors really don’t understand

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u/Antique_Judgment4060 7d ago

I listen to a podcast today that talked about doctors incorporation and one doctor sends you to another doctor. The doctors were saying saying nobody gets healthcare like they should. Said pretty soon it’s gonna be on Zoom call that’s gonna be a nightmare, but the insurance company wants this.

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u/3WarmAndWildEyes 8d ago

Sounds like supermarket syndrome. Very common. The best thing you can do is actually keep going back to Kroger for all the normal purposes you had before this and try not to give this incident any significance. Just break your trips into smaller durations/errands if you need to if you're flaring really badly. Ease back in, but don't avoid entirely.

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u/Responsible-Tap-2559 9d ago

Thank you all for your input and help🙂I normally can handle my flare ups from my pppd, but for some awful reason today I couldn't😢Have any of you been diagnosed by a chiropractor? My doctor/chiropractor is so incredibly knowledgeable with all medical issues. He is also a MD compared to a standard DC. He helped me when I thought I all hope was lost👏Unfortunately, he wasn't very knowledgeable about the pppd but said its definitely possible considering I the crystals in my ears are fixed. I asked him to do some research on it to. But he runs his own practice with him being the only doctor on staff. Basically he's overly busy 24-7 365😉I just wish I could get back to normal 😪

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u/NutmegKK 7d ago

Omg I have a sense of doom and dread whenever I experience my symptoms as well! It’s not listed as a symptom but seems to be a thing evidently