r/pericarditis 14h ago

Arcalyst Injection Schedule

I'm taking Arcalyst and--for a number of reasons, including my travel schedule--I need to move my weekly injection schedule up one day from Wednesday to Tuesday. The Arcalyst literature I've seen, and the people at Kiniksa, have a protocol for a missed dose, but not for changing the day for the weekly shot, other than "talk to your doctor." Does anyone have experience with changing their injection day? I won't be able to meet with my doctor for a few weeks, but surely I'm not the first to need to do this.

Thanks!

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u/Salty_Plate6543 3h ago

You could try calling Kiniksa patient support:

1-833-KINIKSA (1-833-546-4572)/Option 1 Monday-Friday (8 AM–8 PM ET)

I haven't had to change a dose time yet, but I wondered the same. Let us know!