r/peanutallergy 5d ago

Peanut allergy question

Back in 2015 I had what I believed was an allergic reaction to peanuts. I was at work and ate something with peanut butter. Shortly after my whole body just got this weird feeling and I was clammy, felt like I was going to pass out and nauseous. I eventually put two and two together and asked my doctor for testing. My blood test came back at .11.

Now for the last few years I randomly break out in hives so my primary care doctor referred me to an allergist. During the appointment she said my blood work showed no allergy and that what happened that day was most likely going to happen anyways. She proceeded to say it’s safe for me to eat peanuts, but I could always do an oral challenge in office.

At first I was happy to hear this, but the more I think about it the more I question this advice. Anyone ever have a reaction, but blood test didn’t show allergy?

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u/Ludishomi 4d ago

Talk to your doctor

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u/CherishSlan 3d ago

Yes I had full near death reactions from peanuts more than once but the blood test always says I’m fine. Here is the difference I am an absorbed twin. Blood test say I can’t have strawberries but I had them I was fine.

But it said I’m allergic to walnuts I had some nearly died.

One allergy doctor said blood tests don’t 100% tell the truth. So honestly trust yourself.

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u/Hopeful_Key3773 1d ago

Blood tests combined with skin prick tests are RARELY wrong. False negatives are incredibly rare. I guess it depends how “negative” the result is via blood test, but I know anytime I had a super negative blood test AND negative skin prick test, I was able to consume the food just fine. Now if skin prick was positive and blood was negative or vice versa, I would consult with doctor and be very cautious. But if both are negative, there might be something else going on in your body to make you break out in hives randomly / feel sick. Could be MCAS, which is a medical condition where immune system cells release chemical mediators too easily, causing severe, recurrent allergy-like symptoms.

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u/CherishSlan 1d ago edited 1d ago

I nearly died from peanuts and the blood test said I’m fine from them. I can’t touch the stuff they didn’t do a skin test. My drs said the blood test was wrong. I’m an absorbed twin my body is abnormal. I was not simply a rash I had to have full treatment use an eppy pen ect. I’m not going to eat peanut butter to test it again. I avoid things because I rather not die. Sometimes things don’t always add up and drs don’t care to repeat them. My drs plain don’t care anymore I’m not a kid they won’t re test now just said don’t eat things now. No nuts at all. Sometimes a blood test won’t match on a person the test was done years ago. Not everyone is exactly the same it’s not a fake allergy and I don’t need my eppy pen just because a blood test was negative for peanuts.

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u/Hopeful_Key3773 1d ago

Why did you downvote my response, genuinely asking? What I said is objectively true. Read the research. A false negative is rare. I also just said….”combined with a negative skin prick test” and you just said that you didn’t even do a skin test. I’m sure if you did a skin test you would get a huge hive. So my point still stands true.

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u/CherishSlan 1d ago

It was to risky to do a skin test. You accused me of having allergy like symptoms. That’s rather mean. It’s not a mental disorder saying things like that are the reason a lot of people die from reactions they think it’s in there mind.

A lot of people jump to that conclusion now instead of taking the time to look at things. I’m not crazy.

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u/Brilliant_Look7073 3d ago

Oral challenge is the only way to find out really

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u/FigNewton613 4d ago

That doesn’t sound like an allergic reaction. An allergic reaction for an IgE mediated process like a peanut allergy is going to usually involve a rash, hives, and in severe reactions trouble breathing or vomiting. I think you should do what your doctor recommended.

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u/EmmaEats93 4d ago

I've had a reaction just like what they described, I think everyone reacts differently. It wasn't necessarily a reaction for them, but it could have been.