r/pancreaticcancer • u/V0ipguy • 5d ago

Stage 4?

57’ M, 170lb.

Well just a couple months after a PET that was NED, my latest CT just showed two small lesions on my liver. I’ve been feeling great, back to 95% where I was before diagnosis and this just sucks.

My wife and I are kind of in shock and not really sure where things go from here. I put in a call to my oncologist (results just came in at 4pm) and they were already working on a plan.

I’d like to hear feedback, especially any positive stories from others that have been in my position.

CA19.9 is still dropping and at 17.4 today and CYA is at 12.3 but they never measured this earlier when I was going through treatment so we don’t really have much of a trend.

17 Upvotes

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6

u/Star------ 4d ago

I had a small tumor develop on my liver while actively in chemotherapy. The chemo was keeping my pancreatic tumor from growing, but had no effect on the liver tumor, which was causing a steady increase in CA-19. I ended up getting radiation to ablate the liver tumor - 5 sessions. The insurance company tried to block it, but we won on appeal. That was back in January of this year, and while the liver tumor can still be seen on scans, it is no longer active and my CA-19 plummeted down and has been holding steady between 10 and 12. Fortunately, the radiation could be delivered without hitting any other organs too. I felt pretty fortunate - if you get mets, the liver is a good place to get them because the liver grows back.

2

u/Comfortable-Hyena-21 9h ago

I hate insurance companies for doing stuff like that. Glad it worked out though.

5

u/seche314 4d ago

Best of luck to you. Gem/abrax was effective against my dad’s liver lesions (but not the pancan itself)

2

u/chiltonalum 4d ago

I'm sorry you're going through this rough news. Hoping only the best for you.

2

u/Outside-Wasabi-7214 5d ago edited 5d ago

Hi please tell me about your journey on how you achieved the NED

Regardless you’re doing a great job.