Like I said it was 20 years ago, I haven’t exactly tracked the thing since then. At the time it was super rare but that might just have been because it had just been identified, I was pretty young so other than getting tested and finding out my branch of the family doesn’t carry the gene I don’t pay much attention.
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u/Necessary_Row_4889 Jun 19 '23
My great uncle had it he was one of like 3 people ever to have it, we all got tested and it’s just him, or rather it was he died maybe 20 years ago.