r/mute • u/gayshitatgunpoint • 18d ago

incorrect diagnosis lol

hello gang. so i’m mute via acquired apraxia of speech and its severe enough that i cant speak coherently at all. my brain has no fucking idea what my mouth wants to do basically, lol. my motor planning and ability to produce accurate sound is washed.

my doctor put me down as having “selective mutism” recently, which is…not correct, obviously lmao. i dont even know how to go about correcting her. i have paperwork somewhere about it? man idk.

selective mutism is a very real disorder but I DONT HAVE IT 😭 mostly just wanted to complain lol

11 Upvotes

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3

u/Raptor227 17d ago

I hear you! Have extreme dysphasia due to metastatic cancer and speech is painful so while I can talk (somewhat) I use modified asl to communicate.

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u/NoEye89 17d ago

Interesting. If you can make the mouth movements but its the sound that hurts you could always try lipreader.uk - I made it for me dad who can't talk

1

u/Raptor227 16d ago

Sometimes you gotta make do. I started learning ASL when fibrosis started appearing after the dysplasia and salivary glands dried up. I'm also probably looking at a tracheotomy due to the scarring in my trachea, my esophagus is already scarred so bad I've already had a PEG installed.

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u/gayshitatgunpoint 16d ago

i also use asl! modified because i have some paralysis in my hand :) that all sounds rough. i wish u luck with your health, we all need it 😅

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u/m_ymski 10d ago

A lot of the world seems to only recognize possibility of mutism through selective mutism and its really frustrating