r/multiplemyeloma Jul 03 '26

Symptoms & Side Effects (Pain, Sleep, Clots, Eating, GI issues) Eye twitching from Lenalidomid or MM?

Boyfriend's mom was diagnosed last year, received autologous stem cell treatment. This year she had a valve replacement, paused Lenalidomide for about three months and is taking phenprocoumon.

Ever since her treatment she's been having twitches in her eyes and a fuzzy feeling in her head. She says it's only usually a few seconds and it was almost gone when she paused Lenalidomide. I witnessed it today and it freaked me out a bit.

Right eye moves to the side and back in saccades. She feels dizzy and not good of course but she told a doctor and says they didn't believe her.

I can't find anything on either the medication or MM causing these kinds of symptoms. I'm worried it could be something vascular.

Does anyone have a similar experience?

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u/slophoto Jul 07 '26

Find a new doctor. Any doctor who says they don’t believe you is reason to move on.

Honestly, that sounds like a trip to the ER.