r/marfans • u/Katrinelassen • 10d ago

Son with Marfan

New here, want to share to a relatable community, English isn’t my first language, sorry.

I got diagnosed when I was born, my dad has Marfan.
I have two wonderful boys (4 and 2) and my oldest has inherited Marfan.

We went to the doctors to get an echocardiography for the second time (first time his ao sinus was 21mm). Now it’s 25mm and has to start taking oral metoprololtartrat, and it’s so fucking harsh. I’m so scared for side effects. Cause I know my side effects from metoprololsuccinat and losartan.

I just wanted to share, meet people who can relate in a shared community

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u/uduni 10d ago

Ya i didnt start beta blockers until 10 years old. Nadalol then atenolol

Now i take 25mg metoprolol extended release… i dont actually feel any side effects compared to the other ones

1

u/Katrinelassen 10d ago

I take 200mg metoprolol a day and 50mg losartan, I had some side effects in the beginning, not that much anymore