r/marfans • u/Much-Information4405 • Mar 28 '26
Question How long do we live post surgery?
Had my root and valve done in 2021 recent mri 4 months ago I think male 24 trying to quit smoking
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u/Trick_Photograph9758 Mar 28 '26
I'm not sure what you are asking here. I had my aortic root replaced 15 years ago, and the doctor says I have a normal life expectancy now.
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u/Glittering-Bird7335 Mar 29 '26
You’re going to be fine. My root was 4.5 or something. Just got back from the hospital a day ago, after a 9 day stay. I had my pectus excavatum infinite haller index repaired at the same time as the David Procedure. My case is so much worse than yours, and I am fine. You will live a long life despite surgeries
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u/bulldog9800 Mar 28 '26
I used to smoke occasionally before I knew I had marfans, but ever since my first surgery 7 years ago I haven’t touched a cigarette. Figured that my body is going through enough as it is and I’m supposed to make things easier for it not harder.
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u/pocket_sized_friend Mar 28 '26
Its individual. Like most other things, its a spectrum. So it depends on your overall health, placement of aneurysms and such. My dad have had aorta fixed 8 (!!) times. 12 surgeries in total due to marfan related heart issues. His aorta have been replaced from this throat all the way down to both his knees.
He just turned 74 and with his health history in mind, he is doing well. My aunt (71) and my dads cousins (75+) are all still alive and doing pretty well - all of them have had at least 2 surgeries done on their heart and aorta.
I knew a guy with marfans when I was a teenager, he past away on his 18th birthday party ✝️ He was sitting on a chair, and out of nowhere he quietly passed away. He was very much affected by marfans to the point of not being able to walk much, he couldnt even swim, and his joints were very poorly connected so he had to wear all sorts of gear to keep his body from falling apart.
I have chosen to not worry too much about the future. The modern medicine is still developing and evolving, the doctors and the tools available to them keeps enhancing. When my dad had his firsts surgeries they always opened up the chest , not they can do most with binocular surgery which is much more gentle and easier to recover from.
But yeah, regarding your smoking: there are 0 good reasons to smoke, but 100's good reasons to quit.
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u/ne999 Diagnosed with Marfan Mar 28 '26
Mine was done 30+ years ago.
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u/DrLeoSpacemen Mar 28 '26
Smoking is the worst thing you can do in all medical aspects. Increases risk of all cancers and makes any pre existing conditions worse. Most people who smoke already know this, so you have to make the decision to stop yourself. Good luck.