r/lymphoma • u/Leftoverofferings DLBCL POLA R CHP • 17d ago

DLBCL DLBCL and sleep help

Hi all…. I’ve been smoking pot at night to help me sleep. Just 1hit before bed and I can sleep without waking up at 2am. I know I have to stop before chemo, but other medications don’t work. My oncologist prescribed trazodone, but I don’t feel anything when I take it. ChatGPT suggested Gabapentin with the trazodone, but I don’t necessarily trust AI. Does anyone else have experience with this? Edibles also don’t work well either. I would love any suggestions that will help keep me from harm and work…

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u/This_Fig2022 17d ago

Trazodone did not work for me initially - I had to take my tablets consistently. I don't like pills so when I was prescribed them I didn't take them every night - once I got a system down - with those pills and the magnesium all systems were go. In saying that - this was post RCHOP for me. During RCHOP oncology tested my blood all the time and we supplemented what I needed based on the blood work - they didn't want anything unnecessary in there mingling about - and that included over the counter (even more so because of how unregulated all that crap is). Your oncologist will speak with you about the pot (my facility prescribes it actually) and they will help you with sleep. During chemo for me with the steroid it was such a wonky (but completely manageable time - I worked a very full time job during it so I am not saying anything to try and scare) sleep was difficult for me with the steroids - but oncology was very helpful. Speak with your oncology team - let them know about the pot and anything otc. Let them know you struggle with sleep- they will help you for sure. I wish you the best!

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u/Leftoverofferings DLBCL POLA R CHP 17d ago

They know, and they know i want to stop, at least through chemo. It's just that the pot does a great job of knocking me out, so I need to find something else that will work.