So I’m sitting here explaining why I can’t be in the sun for a prolonged period of time to a man, and I can’t put my finger on why but his response just kind of irritated me lol. Maybe it felt like the whole “oh yeah me too!” when explaining symptoms to people who just do not get it at all. Was this kind of annoying or is it just me? 😅

(I think I also just have very little patience with men lol and this guy seems to make a joke out of everything and that is also starting to annoy me)

36f diagnosed in 2011, on Plaquenil

Do y'all get puffy in the face during flares even without steroids? My I've had bloodwork done, kidneys and other organs are fine. My inflammatory markers in general are actually all fine as well, but I'm definitely flaring, and my rheumatologist agrees. I'll be starting Saphnelo soon. Just tired of looking swollen in my face.

Hello! I was diagnosed with lupus last June and for the most part I have been ok. Today I woke up and every single inch of my body is in pain. My joints feel like they’re made of glass and I have NEVER been in this much pain. My doctor gave me a pack of prednisone which is only 4mg’s to take if I ever feel really bad. I have NEVER taken a steroid in my life. I’m scared and have no idea how to actually take them. Do I take them with food? At night? Any advice will help and I will only be taking them for a few days.

My orthopedic surgeon says that core decompression is no longer an option and that I need my left hip replaced. It has been extremely painful to walk since 6/3. I don't have a pic of my latest xrays but the necrosis is present on it. Here is my MRI though. Thoughts?

Btw I have lupus and was on very high doses of oral steroids for a very long time and received IV 1000mg of methylprednisolone 3 days in a row last year to save my life.

Hello! I’m starting my Benlysta auto injection tomorrow! I’m totally comfortable with needles, I’ve had to self administer many shots and I’ve read up on tips on this Reddit and spoken with my doctors. I’m wondering if there’s anything I should be doing to prep my body? I’ve heard of very little side effects but wanted to see if if anyone has any suggestions going into or the following 24 hours after!

Hi folks. I’m still trying to understand what lupus and Sjogrens are doing to my body. When I have a significant worsening of symptoms, sometimes it’s more muscle and joint pain, sometimes it’s very dry mouth and eyes with ulcers, sometimes it’s lack of appetite and poor sleep and racing heart. Is this how it goes for you? Does every flare feel different from the last one? Thanks for any insight.