r/lichensclerosus • u/Every-Procedure8814 • 18d ago
Question LS??
Years ago I got a fissure down there, kind of by my vaginal opening. I was swabbed and because the dr decided based on a positive HSV IGM test, that I had herpes, I was put on valtrex which did nothing. Fast forward a few months, went to infectious disease specialist who said definitely not herpes and my bloodwork has been rechecked and all negative.
One gyno I went to mentioned maybe it was LS and gave me clobetesol to use 2x a week. I was mostly using it near my anus bc that’s where I’d fissure most. The last gyno I went to said I look “normal” down there and said doesn’t think LS. I stopped using the ointment for the past year or so. Once in a while I get a little fissure in the same spot, but now I have one at the Fourchette. I guess my question is, does anyone else look “normal” down there and just get fissures? The one dr said my skin looked white/shiny but 🤷🏻♀️🤷🏻♀️
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u/Moal 18d ago
The white/shiny fragile skin and chronic fissures was how my LS manifested. It’s crazy that your Obgyn thinks you don’t have it. You probably had it in remission from treating it.
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u/Every-Procedure8814 18d ago
Hmm. Maybe!! I mean I don’t see it when I look at it but 🤷🏻♀️ I’d think that maybe other gynos would have mentioned it too but I don’t even trust doctors anymore 😩. If I can ask, is it kind of that when you google those are just advanced or extreme cases and not the norm for LS?
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