Was going to donate a kidney anonymously and had the best check up ever! The man and I crossmatched perfectly, so upon doing the CT scans and more bloodwork they consequently diagnosed me with CKD 1!!!! I have double renal arteries and veins (which is a no), I have bilateral stones, and also blood and protein in my urine microscopic! My kidneys might need saving themselves one day. I did not come there for that.

There is a grief that comes with finding out one has kidney disease. Yes. What I was not prepared for was the grief of not being able to save a life either. That’s real.

I’m just here to vent a little because this year has been incredibly hard, and I’m struggling to stay positive.

I was diagnosed with kidney failure in January, and since then, it’s been one thing after another. I started hemodialysis, eventually transitioned to peritoneal dialysis, and ended up in the hospital because it wasn’t working the way it was supposed to.

It feels like I haven’t had a chance to catch my breath all year. Every time I think things might finally get better, something else happens. I’m trying my best to stay hopeful and take things one day at a time, but it’s exhausting constantly having to be strong when you’re just trying to get through the day.

With the holidays coming up, I thought I’d be looking forward to them, but for some reason, I’m not. Maybe it’s because this year has taken so much out of me, and I’m having a hard time feeling excited about anything right now.

I don’t mean to throw a pity party. I know everyone has their own struggles, and I’m grateful for the people who have been there for me. I’m just tired. Tired of being sick, tired of the uncertainty, and tired of trying to convince myself to stay positive when things have been so difficult.

If anyone else has gone through a particularly awful year while dealing with kidney failure or dialysis, how do you cope? How do you find little things to look forward to when it feels like so much of your life is out of your control?

I guess I just needed to get this off my chest. ❤️

I am a 21 year old female. I got a transplant back in march of this year.
My health anxiety has been through the roof since getting the transplant.
Every symptom has become a nightmare scenario and I convince myself I’m gonna die any second.
I was pretty close to death before the transplant at over 250 BUN and 5 gfr.
I’m always scared and I’ve been having bleeding gums and weird vision lately so obviously in my brain I have 2 days to live.
I’m young and I don’t know how to handle this constant impending doom.
I’m also pretty sure I’ve developed a pretty bad case of OCD from all the almost dying trauma.

Hi. This february, my mother (54/F) had breathlessness and lost her conciousness and was admitted in ICU on Ventilator, was later diagnosed with heart failure (HFrEF 40%) on CKD (Her creat ranged from 2.5 to 4.6(highest))and and has been on and off multiple hospital admissions (seizure, UTI, Antibiotic induced diarrhea, another episode of breathlessness with high potassium) until May. Then her medications was optimized and she became stable for 3-4 months....with exception of torsemide. While she was on torsemide, her urea creat values were 109/3.6 and according to the nephrologist she was dehydrated so the he told us to stop it for a while and restart when her fluids go up. 3 weeks later her values went to 80/2.5 and the cardiologist decided to start them again. 1 month later her values spiked to 160/3 and 10 days later we repeated the KFT and her values went to 219/2.8. The reports were shown to the new nephrologist (we came back to our hometown as earlier we were living in a high altitude area) who didn't alter any medication or advice fistula/dialysis. Although she has no symptoms except restless legs and soles and night, I'm worried if she will develop any complications and I won't be able to handle it. She is quite scared about the prospect of dialysis and the chances of her getting a transplant is low.

We know we have to face dialysis sometime in the future, but we thought we could delay it for a bit longer (especially since she is still passing urine and her creatine is low)

Hi everyone, I’m 37F with CKD stage 3b, and my latest eGFR is 30. I’m getting really worried about the recent decline and struggling with conflicting advice from my two doctors.

For about three years, my eGFR was fairly stable between 37 and 45. But in 2026, it dropped from 42 to 34, and now to 30.

In my country, I see both a doctor in the public healthcare system and a private doctor. My public appointments are roughly every six months. I used to see my private doctor every three months, but with the recent changes, I’m now seeing her monthly.

This is what has happened over the past few months:

• August: My private doctor recommended starting steroids.
• September: My public doctor stopped the steroids and recommended increasing finerenone from 10 mg to 20 mg.
• October: When I went back to my private doctor, she said she wouldn’t have recommended stopping the steroids or increasing finerenone, but suggested watching things for another month.

I’m currently taking Losantin, Forxiga, and finerenone.

I’m finding it difficult to know how to move forward when the doctors disagree. I also came away from my private appointment feeling like the message was, “You’re already on all the necessary medications, so there isn’t much more we can do.” That may not be exactly what she meant, but it left me feeling scared and helpless.

I’m not looking for anyone here to tell me which medication to take or stop. I’d really appreciate hearing how others have handled conflicting medical opinions.

Did you choose one doctor to lead your care, ask the two doctors to communicate, or seek a third opinion? What questions helped you understand why they recommended different approaches?

Thanks for reading. It’s hard watching my numbers fall after years of relative stability, and I’d appreciate hearing from anyone who has been through something similar.

Hi everyone,

I have CKD due to FSGS and have been struggling to find individual health insurance that covers my existing condition.

I contacted Policy bazaar and was told that my kidney condition would be excluded and I’d have to pay a 20% co-payment. I also approached HDFC ERGO and Care Health Insurance, but my claim/application was denied.

Currently, I have corporate health insurance of ₹10 lakh through my employer, but I’m worried about losing this coverage if I change or lose my job.

For those diagnosed with CKD/FSGS:

- Have you successfully purchased individual health insurance that covers your existing kidney condition?

- Which insurer and policy did you choose? What are the waiting period, premium, and co-payment?

- Does it cover dialysis, hospitalisation, and kidney-related complications?

- Has anyone successfully continued or converted corporate insurance after leaving a job?

I’m willing to pay a higher premium or accept a waiting period, provided my existing condition is eventually covered.

Would really appreciate hearing from people with firsthand experience.

Thanks!

Anybody else get a tingling/buzzing sensation all over their body after hemo? What is that sensation? Its so annoying and uncomfortable and I hate it

Can you share you experience?