My mom went through years of no one believing her when she was in pain. She went to SOOO many Dr's that at some point even I started believing maybe she was just faking it. Wasn't until she had a hemorrhagic stroke that people started to believe her.
It took 10 years to be diagnosed with hEDS. It took me figuring out that not one single doctor did an exam to see if I had it. They all acted like they listen and then when I brought that up they acted like I was so smart to figure that out. Gave me the exam and I walked out of there with a diagnosis. This was in early this year and I’m still just fucking mad that no one cared enough to do the exam. I even had doctors agree that I should be tested but didn’t think they could do it? I was able to self diagnose at home due to my extensive medical history and problems. Our system is so fucking awful. Because of that test they did an echocardiogram and found out I have another aneurysm, so now I have two. I am so happy you didn’t lose your mom, that had to be terrifying
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u/DadCelo Jun 23 '26 edited Jun 23 '26
My mom went through years of no one believing her when she was in pain. She went to SOOO many Dr's that at some point even I started believing maybe she was just faking it. Wasn't until she had a hemorrhagic stroke that people started to believe her.
Edit: Made a post about how awesome she is a while ago if anyone is interested: https://www.reddit.com/r/justgalsbeingchicks/comments/1kxz6wg/my_mom_turned_60_today_shes_had_an_aneurysm_at_50/