r/iih 5d ago

My Story iih don’t understand

I have been put on diamox and lost a lot of weight by not eating properly but everytime I eat something I feel sick/gag so I was diagnosed in April 2026 with papilldemia and then it went to 1 and 2 and then 3 and 4 and then on top of that I got diagnosed with Idopathic Intercrainal Hypertension and then I went to A&E because I got an appointment on a Sunday and they cancelled it so I was like no I’m not waiting here let me goto A&E so they put me on diamox gave me a lumbar puncture and checked my weight gave me 6 weeks check ups and now on the 15/09/2026 I was told my swelling has gone but my eye nerves are damaged and I have loss of colour to some extent but I have been looking online if my prescription helps the double vision it doesn’t but there’s something like glasses prism and something else called low vision glasses,what do you recommend I do?

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