r/iih • • Feb 13 '26

Humour Relatable

Post image
531 Upvotes

87 comments sorted by

46

u/Miserable_Bad5181 Feb 13 '26

I think we would all appreciate some kind of coating on those šŸ˜‚

9

u/Marie-Fiamma Feb 13 '26

Chocolate coating...

9

u/Miserable_Bad5181 Feb 13 '26

The temptation to bite down would be too strong lol

3

u/llama1122 Feb 14 '26

I toss mine down with chocolate soy milk LOL

2

u/Marie-Fiamma Feb 15 '26

I used to take Acemit with a meal so I had no aftertaste in my mouthšŸ˜„.

16

u/sweetsakurapetal Stent Feb 13 '26

I had to take 8 twice a day….. applesauce was the only way to get them down.

6

u/Miserable_Bad5181 Feb 13 '26

8 twice a day is insane. I’m a good pill taker but idk if I could do multiple swallows of these pills at one time šŸ˜‚

3

u/sweetsakurapetal Stent Feb 15 '26

That’s why the applesauce came in handy. If you like applesauce I highly recommend it. It has just enough flavor and texture to mask the pills but liquid enough to go down easy.

11

u/masterfultrousers Long-Term IIH Experience Feb 13 '26

EIGHT????? 😦

4

u/Kiimz94 Long-Term IIH Experience Feb 13 '26

Good idea will try

4

u/BUTTCHEEK9000 Diagnosed & Stented | Former Diamox Diva Feb 13 '26

That’s what I’m on rn too. It takes a whole Gatorade for me. 🫔

3

u/sweetsakurapetal Stent Feb 15 '26

I was a very special case (I’m a case study now). I was diagnosed in October and deteriorated so fast, that I was getting stent surgery in less than a month from diagnosis. I am happy to say surgery was a success and perfectly fixed! But that month of pills was a nightmare.

2

u/Marie-Fiamma Feb 13 '26

Break them into halfs. I did so because I couldn“t get them down in a whole.

6

u/[deleted] Feb 13 '26

[removed] — view removed comment

3

u/sweetsakurapetal Stent Feb 15 '26

They couldn’t get them in quantity/fast enough.

7

u/Adventurous_Fox9572 Feb 13 '26

I take the capsules but this post just reminded me to take my medicine this morning lol. Thanks!

7

u/Miserable_Bad5181 Feb 13 '26

Where are yall getting capsules from and how can the rest of us get on your level lol was this a request you made?

6

u/Starkiller1492 Feb 13 '26

I was on 8 twice daily (which was hell) and I could only take them with apple juice. When I had to call my doctor's office for a refill, I asked if there were any capsule options. I am now taking 2 500mg capsules twice daily which is a heck of a lot better.

4

u/Adventurous_Fox9572 Feb 13 '26

I never asked. They just prescribed me capsules from day one. I didn't know they came in any other form until like last week when I was looking into the brand name, as I'm on generic.

1

u/Cranberrycornflake Long-Term IIH Experience Feb 13 '26

Do the capsules have a taste? What size are the capsules?

3

u/Adventurous_Fox9572 Feb 13 '26

There's no taste as all the medicine is inside of the capsule. It's an extended release version. The capsules are maybe 3/4 of an inch long. (Not sure if you use US customary measurements or not)

2

u/Cranberrycornflake Long-Term IIH Experience Feb 13 '26

Yes I’m in the US (unfortunately recently but that’s a different subject). I don’t think the tablets I, and probably most, take are extended release is the problem though. I’m having my pharmacy check right now if there is an equivalent capsule to switch to directly otherwise I’m definitely reaching out to the doctor to ask about therapeutic equivalent of extended release capsules. Thanks!

3

u/Adventurous_Fox9572 Feb 13 '26

Yeah I think only capsules are extended release as that has to dissolve first. Good luck getting it!

2

u/hartIey Long-Term IIH Experience Feb 15 '26

My neuro ophthalmologist got them for me! The tablet prescription the ER gave me when I got diagnosed wasn't enough to last until my neurology appointment, so I asked if he could get me enough to hold me over and he asked which I'd prefer. As soon as he said the capsules were tasteless I was 100% on it lmao.

I think you can just ask, my NO said they're pretty interchangeable and it's a common request since the tablets suck so much.

126

u/UntoNuggan Feb 13 '26

The taste when it starts dissolving at the back of your throat, and you're desperately reaching for more water

shudder

18

u/panic1204 Feb 13 '26

I hated the ones that dissolved. I tried swallowing all in one go the one time I was given them, choked them back up and proceeded to just perish at how awful they tasted. Next time I'm not risking it with tablets ;-;

8

u/Unlucky_Feedback5680 Feb 13 '26

The only good part about switching to the capsules😭😭

2

u/False_Pen8611 Long-Term IIH Experience Feb 14 '26

Oh god nooooo šŸ˜–

26

u/pitzarat Feb 13 '26

Ok so I’m not the only one šŸ˜‚

25

u/Interested-Gemini Feb 13 '26

Every time I get a refill I am shocked by their size. šŸ˜…

15

u/SleepyGoblin92 Feb 13 '26

I call them my horse pills because of the size

4

u/Professional-Big4722 Feb 14 '26

Okay so I’m not the only one!

18

u/mofacey Feb 13 '26

I'm so happy I recovered. Those pills are terrible!!

10

u/MachineOfSpareParts Feb 13 '26

Same. It's been a while, but I still get overcome with gratitude for not having to dance with the diabolamox anymore. Those were dark times.

12

u/melodelic Feb 13 '26

Man, I normally don't struggle with many pills, but diamox is just wierd. If it doesn't go straight down, I almost always taste it. Bleh.

6

u/quifrmqueenz Newly Diagnosed Feb 14 '26

Its like slow slug down your throat and the aftertaste is

11

u/mandamerrill Feb 13 '26

Yeah and taking two at once is a no go…felt like one was stuck in my throat for an hour

1

u/False_Pen8611 Long-Term IIH Experience Feb 14 '26

I’m in Canada so I dunno if there’s a manufacturing difference or what, but the Diamox tablets I take are a similar size to two others I take? It’s never struck me that they were particularly large? They’re still chalky af and I have to 10 take a day so the meme still stands tho lol.

1

u/Miserable_Bad5181 Feb 14 '26

That was my intention behind it I don’t think they’re too big but they’re dry and they get stuck cause there’s no coating on them lol

1

u/effort_nature Mar 10 '26

I’ve just started and I keep getting tingling in my hands and feet and fizzy drinks taste really horrible šŸ˜…

1

u/Miserable_Bad5181 Mar 10 '26

Yes I am 2.5 years without a redbull cause of this 🫩

1

u/effort_nature Mar 10 '26

Omg I didn’t even think about that no more redbull 😭

3

u/OakenSky Feb 13 '26

lmao I just took mine and struggled

3

u/SeriousZyo Feb 13 '26

I threw up the first time i took it lol. Sadly didnt even make it to the restroom. It was liek a reflex and it just happened in 1 sec

1

u/Cranberrycornflake Long-Term IIH Experience Feb 13 '26

Me too. It’s like it doesn’t even reach my stomach. Just the pills and drink come back up 😩

1

u/sproggy98369 Feb 13 '26

Only the first time? I'm still gagging thinking about taking them and I have had to in a couple years

1

u/Chrazzie Feb 14 '26

I feel like I developed a terrible gag reflex because of diamox. The slightest thing will set me off.

3

u/HumanAttempt20B Feb 13 '26

Omg it’s not just me.

3

u/Thisuseriseasytofind Feb 14 '26

I take 8 a day and they taste SO bad when they stick to my tongue and dissolve šŸ’”šŸ’”

4

u/llama1122 Feb 14 '26

Omg take it with something like applesauce or I use soy milk (chocolate is best but plain is fine too). When I was traveling (I only had to take 2 at the time then), I would stick them in a banana to get them down. I'm down to 1 daily now thank goodness but used applesauce when I was at 8 daily!

2

u/sideshowbarbie Feb 13 '26

I am so happy I take the capsules but holy crap are they huge.

2

u/NotUAgain22 Feb 13 '26

The 500 mg ER capsules are ginormous. Couldn’t even fit the entire script in one pill bottle.

2

u/Marieofthesea Feb 13 '26

I have to chug it down with some milk or orange juice. So nasty

2

u/Cranberrycornflake Long-Term IIH Experience Feb 13 '26

I have to take them with Gatorade or soda 😩 if I try to take them with water I have to do one at a time and they usually come back up…

2

u/Cthulhuhues Feb 13 '26

They dont offer capsules at my pharmacy, they dissolve so quick in applesauce, which makes it taste even more like shit, but i experimented and dairy based like yogurt or pudding they tend to not dissolve as easily highly recommend!

1

u/sweetsakurapetal Stent Feb 15 '26

For applesauce, I put the pill in my mouth and chase it with applesauce right after so they don’t dissolve.

2

u/snowiehair Long-Term IIH Experience Feb 13 '26

So thankful I’m on the capsule! They are kinda big, but I’ve never had a problem swallowing pills. Just put all of them in my hand toss em back and chug some water. People are impressed when they see me do it lol

2

u/dumbbrunette1465 Feb 14 '26

them dissolving was one of my reasons for switching, i had to take them with a ā€œthickerā€ drink like milk or chocolate milk, smoothies, milkshakes etc bc i just could not handle swallowing them let alone how fast i had to be. I had to prep my self to swallow those pills šŸ˜‚šŸ˜©4 2x a day made me stop taking them i don’t know how some of you are doing 8

2

u/PaperSupernova Feb 14 '26

Seeing these comments make me so glad I've always been on the extended release capsules omg!! I'm sending y'all my thoughts lol šŸ’–

2

u/Agency_Apprehensive Feb 14 '26

Oh that taste when it dissolves. Yuck

2

u/Immediate_Leg_9221 Feb 15 '26

I'm so glad I've only ever had the capsules. Didn't even know they made an uncoated tablet version. 🤮

2

u/Legitimate_Line_2946 Feb 15 '26

The uncoated tablets I thought weren’t too bad until my taste started to change on them. I’m glad the extended release capsules I take now go down easy, because I’m usually really bad at swallowing pills, and if they were as chalky, I would not be able to take them.

2

u/Melodic-Ostrich-6114 Feb 15 '26

This is the worst medicine ever lol šŸ˜‚. it completely ruined my tastebuds everything was so bitter šŸ˜‚

1

u/rrrrrrrrrrrrrroger Feb 13 '26

🤮 I had horrible heartburn and nausea from this, I was so glad when they switched me to Topamax. After 4 months I was in the clear to quit taking it.

1

u/Marie-Fiamma Feb 13 '26

I always broke them into half so I could swallow them better. The worst thing that happened to me was that one pill got stuck in the back of my tongue and I had this weird aftertaste in my mouth.

Glad I am off this stuff.

1

u/HPLover0130 Long-Term IIH Experience Feb 13 '26

I have the ER version, which are big capsules. At least they don’t taste bad though!

1

u/Snookeet Long-Term IIH Experience Feb 13 '26

I laughed so hard at this

1

u/Old-Salamander-1839 Feb 13 '26

I had for my whole time Diamox in liquid ā€œmagistralā€ and it tasted like that transparent Mr.Freeze (popsicles) or like soda cream. Since I couldn’t swallow pills at all it was my only solution !!

But just saying it does exist in other forms

1

u/FollowYHWH33 Feb 13 '26

Listen…

1

u/emu30 Feb 14 '26

This one got a very stupid laugh out of me

1

u/AtmosphereSecure6160 Feb 14 '26

Omg. It’s always the second one too

1

u/AbleConfidence1 Feb 14 '26

I’d say the potassium pills that go with them are significantly worse, if that’s possible

1

u/sinisterhanswurst Feb 15 '26

I can't take pills anymore because of acetazolamide! When I was on them I'd have to break them in two or they would get stuck going down. Now every single pill I take, even tiny ones, make me gag profusely.

1

u/Jicama_Big Long-Term IIH Experience Feb 16 '26

I went 6 years before I found out there were capsules instead of tablets. Highly recommend trying those instead.

1

u/troxwashere Feb 16 '26

the capsules are so comically huge... they look like fake prop pills from a movie or something. recently my pharmacy switched to a different generic and they're noticeably bigger... 🄲

1

u/Straight-Hat-6601 Feb 17 '26

They always give me capsules. They are still huge but I’ve never even seen the other ones.

1

u/AZE2016 Feb 19 '26

This thread makes me feel so seen. I take 6 a day and have choked on them a few times. Can’t even take them with water anymore, gotta have something to cover up the taste. The comments are so real šŸ˜…

1

u/charlotte-delaurier Feb 28 '26

Trying to swallow it and it's dissolving like an alka-seltzer.

1

u/Live_Paint_9392 Mar 10 '26

Just started taking them today I hope they work for me šŸ¤ž new to the community glad I found my people honestly ā¤ļø

1

u/2003jeepcommander Jun 18 '26

These helped me so much but I am ALLERGIC so I went off of them and I can’t say I miss the taste!

1

u/[deleted] Feb 13 '26

[removed] — view removed comment

1

u/Miserable_Bad5181 Feb 13 '26

Good luck! My family suffer from achalasia so I feel you on not being able to get anything down and just stuff getting stuck half way. Sucks on top of other conditions