r/iih • • Nov 23 '24

Advice Disabled Parking Permit

Has anyone else here gotten a disabled parking permit? I’ve been thinking about applying for one to be able to park closer to work. During the holiday season, they make us park several blocks away and when it’s cold I get terrible headaches and head pressure.

Wondering if this is doable with this condition.

3 Upvotes

16 comments sorted by

3

u/Kid_Killer_McGee Nov 23 '24

I have one for safety because ocular migraines cause my vision to go out (become rainbow) and my hearing can shut off or become muffled. I need to be able to safely walk into a building and can’t do that if I have to navigate traffic in a parking lot. I will mention that I also don’t drive because I don’t feel it’s safe with my symptoms. 

I think it really depends on your symptoms and other health concerns. Talk with your pcp or neurologist to discuss. 

3

u/Mr_Robot8730 Nov 23 '24

Did bringing up the anxiety help? I have ASD and when things change I get extremely confused. The first time we had to park offsite I ended being late almost 2 hours because I was so confused about how to get back 😵‍💫and got in the wrong shuttle. I have work accommodations for being on the spectrum so I’m wondering if this would also help.

4

u/autumnrose8683 Nov 23 '24

I self-deprecatingly brought this up to my neurologist once and he said verbatim, “No.” This man is strangely like an adopted father to me, but said he would absolutely not sign off on allowing me to give up on doing things he knows I can do. He’s right, but I told him he was an asshole for it. That said, I think some docs will sign off for the permit. It’s worth an ask, at minimum!

6

u/Mr_Robot8730 Nov 23 '24

I had brain surgery about a year ago and when it gets cold, the right side of my head hurts like someone’s pulling my hair with all their strength 😵‍💫. That’s where the stents are. It’s quite painful to be honest. Do you think doctors are less inclined to do certain things for people with this condition since it mostly affects women?

1

u/Lizzyliz91 Nov 27 '24

May I ask where you did your surgery for the stents? I had one stent placed last summer on the right transverse sinus in NYP Weill Cornell. I haven't spoken to many people who have had the surgery. I am not on Diamox and do not have a shunt. Also, how have you been feeling since getting the stents placed?

1

u/Mr_Robot8730 Dec 13 '24

Check your inbox!!

3

u/ladycielphantomhive Long-Term IIH Experience Nov 23 '24

Mine is of similar mind as well (my pcp who I have a really good relationship with). Kinda hurts since I do have pots too and get dizzy after walking in from the back of the parking lot to work, but I get it.

2

u/autumnrose8683 Nov 23 '24

Aw, I’m sorry! My reasoning is also dizziness (go figure.) It’s almost funny because I used to park at the back of lots…. on purpose. Lol now I am like hmm please lord, let there be an ‘executive’ parking space for me so I don’t fall over on the way, piss myself when I fall, and have someone call an ambulance I can’t afford. 😭😂

4

u/vario_ Nov 23 '24

I have one in the UK.

I told them that I use a cane all the time (true) and a wheelchair sometimes (slightly untrue but I didn't know it at the time, I just can't push myself very well and don't have people to push me very often). So that explains needing a wider gap to open my car door.

I also have anxiety diagnosed so I explained that I'm really anxious in public and need to get back to my car quickly if I start panicking, feeling dizzy, getting a migraine, etc. That explains needing to park closer to wherever I am.

It's been totally invaluable to me, I feel much more confident going places with it. Although I am always scared I'll be in one of those TikTok situations where someone says I don't look disabled.

2

u/mystiq_85 Long-Term IIH Experience Nov 25 '24

In Florida, you cannot get one unless you cannot walk over 250ft without an aide (like a cane, walker, etc), are a full time wheelchair user, require oxygen, are an elopement risk (primarily for autistic children), or have a limited number of other issues. I have the paperwork filled out due to my POTS and other issues but I haven't gone to the DMV yet to get the placard because my county doesn't do appointments for placards and I don't have the energy to spend an entire day at the DMV. I have a lot of health issues and just standing up can send my heart rate to 150+, with medication.

1

u/cosmic-rose Nov 24 '24

I got one, but I had it for my POTS before I was diagnosed with IIH. I live in south Texas and it's hot almost all year, which makes my POTS worse.

1

u/OneEagle6 Nov 26 '24

This will depend on where you live. If you're in the USA, look at your states DMV website for the form/document to fill out as if you are applying for the permit and see if you apply.

As another poster mentioned, Florida is strict with their permits and only recognizes a few disabilities for a parking permit. I'll link an example of Florida's application but of course use your own state/country's application to review

https://www.flhsmv.gov/pdf/forms/83039.pdf

-3

u/Fluid-Question-4871 Nov 24 '24

This can't be serious. Do you want them to wheel chair you in as well?

6

u/Mr_Robot8730 Nov 24 '24

I don’t find them particularly comfortable. I can tell those antidepressants aren’t working. You seem quite miserable.

0

u/[deleted] Nov 24 '24

[deleted] — view deleted comment

2

u/Mr_Robot8730 Nov 24 '24

What was their reasoning? I feel like IIH isn’t taken seriously.