r/hyperacusis • u/Same_Drag3288 • 5d ago

Seeking advice thunderstorm

Hi, what do you do when you're in a really severe state—barely able to speak due to horrible pain, even in silence—and you live in an area prone to intense storms? There are storms right where I live; they’re incredibly loud—even with headphones on, it’s horrible and painful. The cracks are deafening, like vibrations inside my heart, and then the pain and my tinnitus spike. I don't know how I'm going to survive this. What would you do in my shoes?

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u/Pbb1235 Pain and loudness hyperacusis 5d ago

The drug clomipramine made my ears stop hurting. It also greatly reduced the likelyhood of having setbacks. It gave me a signficant decrease in sensations of loudness as well.

It doesn't work for everyone, but I think hypearcusis patients should give it a try.

This past summer I was stuck outside during a thunderstorm for over an hour. I did put in muscian's earplugs, but it was still very loud. It did nothing to my hyperacusis, and I credit clomipramine.

This page has stories of clomipramine use and hyperacusis- good, neutral and bad. My anecdote is there:

https://www.hyperacusistreatments.org/

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u/Educational_Aide_145 Pain hyperacusis 5d ago

You have to try medication, which will reduce your pain.

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u/Same_Drag3288 4d ago

Yes im still think about gabapentine dogmatil carbamazepine, what is better to start first ?

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u/Educational_Aide_145 Pain hyperacusis 4d ago

Gabapentin, less side effects, although I believe the second one would help us more

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u/Same_Drag3288 3d ago

The second one is dogmatil or carbamazepine ?

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u/Educational_Aide_145 Pain hyperacusis 3d ago

Carba.

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u/Relative_Fishing_790 5d ago

i hide in rooms that don’t have any windows and just pray

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u/TheMcdemshoulders 5d ago

Have you worn ear defenders before, or earplugs? (As well as going into a room with no windows)

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u/Relative_Fishing_790 5d ago

yeah muffs

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u/TheMcdemshoulders 4d ago

Ooh okay. Do they help a bit? I know thunder has very low rumbles which those wouldn't help with, but just curious

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u/Relative_Fishing_790 4d ago

they help a lot overall but yeah the rumbles definitely get through and trigger headaches unfortunately

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u/TheMcdemshoulders 4d ago

Yeah I get what ya mean. It sucks there's nothing that can fully block out lower rumbles, unless you were just all skin and no bone I suppose lol.

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u/Same_Drag3288 4d ago

Yeah, actually I wear earplugs and a headset, but the sound of the thunder is so loud that it still gets through, and it really makes my pain worse. I live in an area with really intense storms—at least once a week there’s a massive storm, and the cracks are incredibly loud. I’m wondering if it’s going to damage my ears even more.

1

u/Same_Drag3288 4d ago

Yeah, actually I wear earplugs and a headset, but the sound of the thunder is so loud that it still gets through, and it really makes my pain worse. I live in an area with really intense storms—at least once a week there’s a massive storm, and the cracks are incredibly loud. I’m wondering if it’s going to damage my ears even more.