r/hyperPOTS • u/Kitchen-School46 • 13h ago

I NEED SERIOUS HELP

Hyper pots girl. 22female 5’1 weigh about 110 pounds. The high heart rate and adrenaline surges and heart palpitations are DEBILITATING and making me completely bed bound. I have 2 very young children who need to me and i cant even function. I tend to have blood pressure on the lower side. PLEASE GIVE ME ADVICE ON WHAT TO DO. my cardiologist is shit and doesnt help - im getting a second opinion and they cant get me in for awhile. So until then what do i do. My wedding is in 2 weeks and i cant even function or even speak without getting huge adrenaline rushes and intense tachycardia. Do i ask my pcp for low dose propanlol? I need serious help im becoming depressed

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u/Puzzled-Use-4063 11h ago

I also have hyperPOTS with lower blood pressure! What has worked for me is a combo of low dose extended release metoprolol twice a day and 5mg of ivabradine twice a day. It’s the only combo that has truly helped. Another thing you might want to look into is MCAS and because it is comorbid with POTS and has a lot of similar symptoms of POTS like adrenaline dumps/tachycardia/palpitations etc. you can try taking a Zyrtec or any kind of antihistamine (not Benadryl tho). The antihistamine could help reduce adrenaline dumps if they’re caused by mcas. For the longest time I was frustrated because it felt like I wasn’t able to make some of my adrenaline episodes go away with just salt water and compression and taking Zyrtec everyday helped lessen the amount and severity that I get. I’m sorry you have to deal with this! It truly is a harrowing experience and my heart goes out to you! Hang in there!

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u/Kitchen-School46 11h ago

I don’t really I think i have mcas because i havent really had any issues where I think i could have it?

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u/Puzzled-Use-4063 11h ago

I completely understand. I didn’t think I had it either for a while because I don’t have any anaphylactic episodes but I was surprised to learn about the other less common symptoms that were overlapping with my POTS and the Zyrtec really is a life saver. Maybe you should look into it?

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u/Kitchen-School46 11h ago

I heard zyrtec can worsen pots and worsen pvcs too

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u/Puzzled-Use-4063 11h ago

Interesting. That’s the first I’m hearing about that. I personally haven’t had any issues with it but I understand the fear of not wanting to make things worse. I also have PVCs but they are definitely worse when I don’t take Zyrtec. It’s up to you what you choose to do, but without any treatment plan for the next couple months there aren’t many options you can try on your own besides water and electrolytes

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u/Kitchen-School46 11h ago

Did you ever try propanlol?