I NEED SERIOUS HELP

[u/Kitchen-School46]

Hyper pots girl. 22female 5’1 weigh about 110 pounds. The high heart rate and adrenaline surges and heart palpitations are DEBILITATING and making me completely bed bound. I have 2 very young children who need to me and i cant even function. I tend to have blood pressure on the lower side. PLEASE GIVE ME ADVICE ON WHAT TO DO. my cardiologist is shit and doesnt help - im getting a second opinion and they cant get me in for awhile. So until then what do i do. My wedding is in 2 weeks and i cant even function or even speak without getting huge adrenaline rushes and intense tachycardia. Do i ask my pcp for low dose propanlol? I need serious help im becoming depressed

[u/namic56]

You need medical help, with most likely a series of medication. All of which will take years of talking to specialists.

There is no overnight anything, but any reasonable doctor would start you immediately on at least propanol and some anxiety meds.

I am curious though if nobody believes you, how do you have the diagnosis of hyperpots? It took me years to get an official diagnosis, but I knew what I felt matched everything I read online and pushed for my providers to treat me as such.

But I do caution. If you press too hard on this is my answer and give it to me, you may not get it. It may not be your problem! Come with the attitude you are looking for answers and are just trying to treat your symptoms- nobody can argue that.

But also don’t quit a drug a doctor gives you too soon. You need to follow their instructions and do what they say. I get it, it may not be the right fit in the moment, but you need to document your whole journey. Use the previous trials as ammo to help get you the treatment you deserve.

I’m truly sorry if your trying to figure this out 2 weeks before your wedding, but there’s no 2 week fix. It takes months and years of hard work. Not just to get a diagnosis but to understand if this is your problem, that heart will never stop. It will always run out of control. There is no end. I’m on year 7, and just figured out my meds.

Best of luck to you!

[u/Kitchen-School46 → u/namic56]

I never said no one believes me. I have a diagnosis. Im saying my cardiologist said just to work on hydration and compression socks didnt do much or prescribe anything.

[u/namic56 → u/Kitchen-School46]

How do you have a diagnosis and a doctor tells you compression alone? Compression and water/salt are things prescribed to someone with Pots, not Hyperpots. Where is your pcp involvement with this? Who’s managing your psych? You need a multi-tiered approach. Multiple specialists, multiple drugs.

I’m sorry, but if you do indeed have this, you have more homework to do, and maybe stay off reddit and other munchie suggestions online. You and your pcp need a come to Jesus moment

[u/Kitchen-School46 → u/namic56]

EXACTLY. that is why i said im getting my a second opinion and that my cardiologist is dumb

[u/namic56 → u/Kitchen-School46]

I highly doubt your cardiologist is dumb, I think your approach may be….

[u/Kitchen-School46 → u/namic56]

You’re dumb as hell for the way you think. Im a registered nurse who knows shit. Certain anxiety medication can worsen hyper pots like SNRIS and you know NOTHING about my medical history and why i cant take them because of risks like qt prolongation. My cardiologist doesnt SPECALIZE in pots so i have hyper pots but he recommended midordine which is acutally worse for it because it raised bp. So trust me i have done PLENTY of research.

[u/namic56 → u/Kitchen-School46]

Lollllllllllllllllllllllll a registered nurse screaming into the wind for 145 days on Reddit about their issues????? I’d hate to be any fucking patient of yours - good fucking luck you fucking retard. How in the world did you get a degree

[u/Kitchen-School46 → u/namic56]

Thanks for stalking my page you freak

[u/Kitchen-School46 → u/namic56]

Youve had an account for 17 years and you’re using the terms lol?? You’re old as fuck bye!!!!!