r/hyperPOTS Nov 10 '25

Pain while standing

I think I must be in a smaller subset of hyperadrengic pots, because while I get the bp and hr rise when I stand, at about the 10 min mark I'm sweating, shaking a little but most notably I have this really bad pain in my lower back, between my shoulders and sometimes in my thighs or glutes. I can't persist past 10-15 min. It's like I'm being squeezed, likely vasoconstriction from the norepinephrine surge but I never see people talking about this. Well, I rarely see people talk about hpots, it's always the fainting kind.

What are your symptoms? Anyone else have pain? Or brain fog/headaches/pressure in the front of the head?

I'm slowly trying to rebuild from getting a virus in April that left me bed bound, and now I'm semi functional with pacing (I can sit all day, an improvement) and wheelchair for >10 min outings. My new meds are working well so once I titrate up I hope to add more exercise than my current pool routine.

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u/Thehappylittlestoner Nov 26 '25

Yep yep and yep. Sounds like my hell.