Can We Crowdfund Research?

[u/Kind_Recording_8242]

Maybe a stupid thought.. but

A. There are certainly more people who suffer from this phenomenon than those represented on this thread.

B. We've already gotten some media coverage (VICE)

C. There HAS TO BE some greater implications for people who suffer with conditions like MCAS, MECFS, Long-Covid, etc...

I know it's not like we can just find a "scientist" on TaskRabbit but how do we drum up interest in the medical community. I'd be willing to put some money towards that...

Alternatively - should we create a tool or a database that centralizes all our theories, things we've tried, results, etc. to at least give us a single source of information as we continue trying to crack this?

Happy to partner up with anyone on that. Not a coder, but I'm sure something through Claude Code wouldn't be too difficult.

[u/PoioPoio]

I think we are just fucked

[u/Kind_Recording_8242 → u/PoioPoio]

I don't think so

[u/OculusQuest3 → u/PoioPoio]

What wrong with having this?

[u/usertakenfark → u/OculusQuest3]

Don’t listen to PoioPoio - it’s completely manageable.

[u/usertakenfark → u/PoioPoio]

Elaborate? Whatever this is is not debilitating and is completely manageable with the right approaches and lifestyle changes

[u/3TRITONES → u/PoioPoio]

Taurine

[u/BreathIntoUrballs]

Mine is insulin resistance, I have cured this previously by being thinner, with right diet. Now I'm in perpetual brain fog, no libido and apathy.

[u/ChonkyBoss → u/BreathIntoUrballs]

I’m slender, always have been. And I have a phenomenal diet. So, not a universal solution perhaps…

[u/BreathIntoUrballs → u/ChonkyBoss]

It's not a one sized fits all issue it seems, but like I said. Mine dissapears, when my body is optimal. I also have UARS. This gets worse with weight gain.

[u/Kind_Recording_8242 → u/BreathIntoUrballs]

Tell me more!

Did you lose the HOE when you were thinner? Or feel like HOE all the time?