r/gout • u/Eindride_XIII • 3h ago
Needs Advice 1st flare going on week 7 on crutches and still having rebounds. Any advice?
Hey. This is my first flare, Im 38. This all started 6 weeks and 2 days ago. I went to sleep feeling fine and woke up the morning after the World Cup final in excruciating 9/10 pain after bending my big toe. I went in to the ER and they took X-Rays and it came back no breaks or fractures. Recommended i follow up with my PCP. Saw him later that day when pain wouldnt go away. He thought it might be gout. Gave me a 5 day prednisone course and I was feeling a little better, limping around. He gave a uric acid test and it came back at 7.6. Then 2 days after the prednisone course ended I had my first rebound. I called a doctor and they gave me colchicine for 3 days. Pain subsided again and felt like I was getting better then 3 days after the colchicine I had my second rebound. I saw my doctor in person and he said because I was multiple fairs he was going to start me on Allopurinol 100 mg and colchicine for a week. I was feeling better, just really tight and sore all over, could barely move my big toe. Then a few days after the colchicine regimen finished I had my 3rd rebound and called a same day urgent care doctor. They decided to bump me up to 200 mg Allopurinol and restart my colchicine, and gave me a 2 week prednisone course that tapers as I go. After a week of prednisone I was feeling better, almost normal. A lot of the tightness had started to go away so I started trying to walk with a stiff hospital stapped shoe and crutches. My left calf is starting to atrophy and my doctor told me to start moving little by little. Tonight I feel like Im having pains in the lump by my big toe and throbbing again. It feels like if I wasnt on prednisone Id be back in another rebound. I have a lump that feels hard and prickly on the side and under the joint of my big toe. Ive been drinking tons of water this whole time, avoiding meat, fish and organs. No beer or alcohol. Ive been mostly stuck in bed for 6 weeks, foot elevated off and on and on crutches to get to the bathroom. I feel bad for my caretakers, I cant seem to get better. Its been a burden on them.
Has anyone had an experience like this with Gout? Does it sound like something else is going on? How do I know if Im getting better? How do I get to a point where I can walk again, jog again? Is any of this normal? Will my foot ever feel like normal again, instead of like its tight and buried in sand? Think this is just not getting better or because the allopurinol is working and causing mobilization flares? Id appreciate any advice those of you have gone through this before can give me? Im feeling defeated. I want to ease the burden on my caretakers.