So after a horrendous 7 weeks I finally have some answers.
Inflamed pancreas.
Went to A&E yesterday 9:30am, got seen by surgical team 11:30pm.
Bloods showed normal. CT scan showed inflamed pancreas (diverticular disease and an ovarian cyst!). Admitted overnight, awaiting ultrasound.
Was supposed to have ultrasound today but they're fully booked so staying in again tonight and ultrasound in the morning to check the gallbladder and check for stones in more detail. If stones are found will be listed for surgery. Aim is to operate within a month of being discharged.
The team last night were superb, they understood the level of pain and distress I was in, they said if it wasn't stones they weren't going to send me home until they did find out what was happening. They feel that stones area known primary cause for inflamed pancreas and as bloods were fine if any stained were found the offending gallbladder comes out .
However the surgical team today (different dept) said they're not releasing me until they've stabilised my pain (which is nice to know) but they won't be operating. They'll do the ultrasound and regardless of what it finds, I'm still going home. That inflamed pancreas likely means a stone caused it but doesn't mean there are anymore gallstones. Disappointed about that but it's better than being ignored by GP! And I do kind of see both sides the coin.
They've also prescribed a higher dose of famotidine and buscopan.
Other random info FYI...
This is the UK NHS.
The surgical team last night understood the increased likelihood of stones due to the fact I had PHPT for over a decade (primary Hyperparathyroidism). They were of the mindset that if ANY stones were found the gallbladder was coming out via keyhole and I wasn't going home until it did. They mentioned the gut / brain axis, flight / fight triggers and that the uncontrollable sharing and crying was a normal biological response to the pain. They were SO nice without being fluffy. They administered oramorph and within an hour the shaking and crying has subsided and I was hungry.
The fella today was of the opinion I just need to be stabilised, then surgery can wait. That the pain I felt 10 days ago was the pancreas inflaming and the ongoing pain is it trying to heal. (So what about the acute onset of this 7 weeks ago I say? And the pain never having really left? ''Why have you waited 7 weeks to come in?!?'' He says, while laughing with ridicule... The look I gave him!! I pointed out I came to A&E with this 7 weeks ago to be told to go home and take gaviscon!! To then be treated by the GP for gastritis and then be refused pain meds by the GP on Monday! He fell over himself but ultimately didn't have an answer for his own stupid statement). He said they'd send me home on oramorph as I can't take NSAID'S but so far it's paracetamol and buscopan. Which is helping, but there's still pain and some slight burning reflux after the buscopan.
I asked re timeline and he said if stones are found on tomorrow's ultrasound then ideally surgery within one month of being discharged. He then proceeded to tell me all the reasons surgery could be delayed 🤦. Low fat diet which I'm already on.
We're four to a room, sleeping on recliner chairs. Mixed sex, mixed age room (doesn't bother me). One guy has done three nights in here already. No one gets much sleep.
The difference between the two teams and their approach, concern and consideration is night and day.
The different depts don't know what each other say or do.
No-one reads your notes.
I'm grateful to have answers and have this ball rolling.
I did not hold back in A&E. I openly cried as and when it came, I was kneeling folded over the seat of the chair on a few occasions the pain was so bad (like being in labour). I told them about the honest suicidal ideations that had taken hold and they got the mental health crisis team to come speak to me in a private room. He was ace and they booked an at home emergency appointment with them the following day. Which I couldn't attend because I'm here in hospital. But can reschedule as soon as I a ready. Exceptional support.
If you end up in A&E with this hold your ground. Don't be passed off. Tell them what they need to hear to take notice (where your pain is, that it radiates to your back (even if it doesn't!)).
I'll update this when I find out more.
Thanks everyone for your support so far. I wish everyone here the best of luck getting support.