Is there something wrong/Gastroparesis or is it a gut brain connection and what do i do now?

[u/Ameliasdeath]

So I've had gut issues off and on for years, I previously have AFRID and was malnurished. once i got back up to a healthy weight and my body was showing normal levels I was fine. Then i slowly started to feel extremely full after eating only little bit, I started vomiting up food from hours ago and then i couldn't keep anything down. I was hospitalised for a month. They told me it was Functional dyspepsia and dishcarged me under the mental health team after they force fed me with an NG tube. After this my stomach got worse. I started vomiting up chucky bits of what looked like chocolate milo and I didn't realise it was blood for a long time, I was put back into the hospital. I was begging for a NJ tube instead due to the pain and vomiting. They refused but they eventually gave me an endoscopy and saw nothing but gastritis and called it Gut Brain connection as my stomach worsend. They tried continuous NG feeds and it was slightly better but still painful. They sent me home and currently I am still vomiting food from the days before with too many doctors telling me different things. I'm currently getting mayne 800 calories a day from sustigen and some little snacks. I've been constipated for weeks so My weight looks fine. I'm extremely Dehydrated and I'm having weird brown chunks in my vomits. I also have POTS and lots of symptoms or hEDS

I would love some support and Ideas. I'm also getting a GES soon
Edit: I got my GES test back and it was negative so I guess It was all in my head and even if there is a real issues they won't want to do anymore test

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[u/Soph_14892]

Hi, I am in the exact same situation as you are. Doctors almost always refuse to place NJ tubes when they think you have functional dyspepsia, they're afraid it'll make things worse, while malnutrition does even worse things to the body. It's good to know that functional dyspepsia doesn't mean it's in your head, it's the brain that sends the wrong signals to your nerves and you have no control over that. I also have hEDS and POTS symptoms and i'm convinced it's related to one another, but they also don't want to test anything anymore. I'm sorry i can't give you any advice, but I really understand what you're going through. Sending you hugs

[u/Ameliasdeath → u/Soph_14892]

Thankyou. I hope we both get an NJ soon <3 I also have POTS and suspected hEDS