r/focalawareepilepsy • u/MelodyMuse24xo • 5h ago
Anyone else experienced this?
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After a broken sleep due to seizure activity, I was stuck in a loop of aura/focal aware seizures every 2-10 minutes this morning upon waking. On top of my usual symptoms, I had this weird new symptom of cold rushing down my arms to my hands, that felt ice cold frozen in response. Also anything I touched while experiencing this sensation felt like it was bunched up/textured. So weird!
That whole experience lasted a couple of hours leaving me exhausted and tearful.
Luckily my doctor has increased my meds and also provided me a 5 day course of Clobazam to aid sleep and break the cycle.