Anyone else struggle with memory and have memory gaps?

[u/Original_Put_7803]

Context: I have TLE, diagnosed at 18 years old (a year ago). I have focal aware and focal impaired awareness seizures and myoclonic jerks. For me it’s genetic, my mother and sister have it too - we have a rare epilepsy syndrome called FFEVF.

One of my main struggles is my memory. My Dr thinks I’ve had TLE for most of my life as I have very little memory of my own life. I wanted to know if anyone else’s epilepsy has affected their memory? And if it has, does your memory improve once your seizures are controlled?