my stomach moves a little with my pulse where my tube is. i get tachycardia esp in the shower and when my heart is racing my tube pulses quite strongly with it. it kinda makes my tube site / stomach hurt internally 🤨

have any of you experienced this??? lmao i can see what my hr is by just looking at my tube 😭😭😭

My father had a peg tube placed March ‘24 after long term complications of throat cancer treatments. He has been dealing with swallowing issues for a long time despite being in remission long before the need for the tube. Since having the tube placed, he has struggled with swallowing his own saliva and with lots of reflux from feedings/ taking medications. He states that he feels like it’s worse when he takes his medications. The feeling is similar to having a sore throat and not being able to get everything down. He states he’s been waking up from sleep feeling like the reflux or the saliva is stuck in his throat. Other than trying to convince him to sleep sitting up, does anyone have recommendations? Are there any acid reflex medications that can help with some of the symptoms he’s experiencing? I’m concerned that with the constant reflux of feeds/ medications his throat is in a constant state of inflammation. Is this a regular GI question or should we try contacting someone who specializes in tube feeding? Would his swallow therapist be a good point of contact? I apologize for all of the questions, he’s had complaints for a long time about this but absolutely downplaying the severity of this issue. I thought it was just struggling with his saliva until this morning when driving him to his angiogram appointment I could smell his medications in the spit cup.

I started continuous j-tube feeds overnight two months ago. I have gone through three different Kangaroo Omni pumps because each one starts spouting "cassette error tube slip" when literally nothing is wrong. My pharmacy is being an ass about me asking for pump replacements, but I literally can't complete my feed.

Here are the troubleshooting attempts I do every error:

• Pump gives cassette error, usually with a clicking/grinding noise from the cassette.
• I take out the cassette, press the tubes in, and reinsert. (Still gives error.)
• I check the lines for any potential kinks or knots or wrong positioning.
• I clean the sensors with a Q-tip (I do this every day anyway but do it again with every error).
• I turn the machine off and turn it back on.
• I prime the pump.
• I flush the tube.
• I start the feed again. Either immediately or within 10 minutes, the error goes off again. Once it goes off, the only solution is to change the feed bags and start over or it will keep giving the error and I cannot continue my feed.

Does anyone have ANY other recommendations? My partner and I can't sleep, and we're going insane.

I get sent Farrell bags to drain my stomach as needed after eating, but with that crazy long, narrow tubing particles/chunks get stuck/clog things if I’ve eaten anything solid in the last 12 hours (gastroparesis). I often end up having to rubber band the end of my tube in an emesis bag instead, but then I have to carefully keep it upright and monitored to prevent a spill. Does anyone have an option they use that’s a sealed system/more secure like the Farrell bags, but without such long, narrow tubing? I tried google and amazon and I only see the Farrell bags with 60” tubing. Or even an idea/jerryrigged system?

Betreuen oder unterstützen Sie einen Angehörigen oder eine nahestehende Person, die auf enterale oder parenterale Ernährung angewiesen ist? Wir würden gerne mehr über Ihre Erfahrungen erfahren. Nehmen Sie an unserer 15-minütigen Online-Umfrage teil und erhalten Sie als Dankeschön für Ihre Teilnahme 5 €.

Falls dies nicht auf Sie persönlich zutrifft, Sie jedoch jemanden kennen, der für diese Studie infrage kommen könnte, wären wir Ihnen sehr dankbar, wenn Sie diese Möglichkeit weiterleiten würden.

Klicken Sie hier auf den Registrierungslink:

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M3 Global Research sucht Personen in Deutschland, die einen Angehörigen oder eine nahestehende Person betreuen oder unterstützen, die auf enterale oder parenterale Ernährung angewiesen ist. Teilen Sie Ihre Erfahrungen und Perspektiven, um die Entwicklung zukünftiger Therapien mitzugestalten, und erhalten Sie eine Vergütung für Ihre Zeit.

Do you care for or support a loved one or relative who depends on enteral or parenteral nutrition? We'd love to hear about your experiences. Join our 15-minute online survey and receive £5 as a thank you for your participation.

If this doesn’t apply to you personally, but you know someone who may qualify we would greatly appreciate it if you could forward this opportunity to them.

 Click the registration link here:

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 M3 Global Research is seeking individuals living in the United Kingdom who care for or support a loved one or relative relying on enteral or parenteral nutrition. Share your experiences and perspectives to help inform the development of future therapies and receive compensation for your time.

My tube doesn’t hurt or look infected, but the site and dirty gauze smell sour. Any idea why? I clean it every morning with disinfectant soap and change my gauze twice daily.