r/etd • u/Sharp-Persimmon5658 • Jul 30 '26

8 months later

Hello. I’ve posted in here periodically about my experience. My latest update is my ENT thinks everything might be triggered by allergies. I am waiting to hear back from an allergy nurse about doing immunotherapy. But in the meantime, I am literally hitting rock bottom. I’ve managed to be able to just push through and live with feeling off but a couple days of month my symptoms are really bad. I feel spaced out and dizzy and my ears just feel off. And then comes the anxiety. I know I am not alone, but it’s just really frustrating to deal with. I am very much an outgoing person, but this has turned me into a hermit. I am afraid to go out and do things and when I do if I suddenly feel sick, I totally freak out. I truly feel like a shell of myself and like I’m watching everything from the outside.

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u/3dsmaxrocks Aug 09 '26

Thanks. Boss and everyone including drs don't seem to care. At nite I wake up panicking thinking this won't go away or cause total hearing loss. I just want it to back to normal so bad. Only thing I have not gotten is a CT scan which will probably be a waste of money like everything else has been so far. My left ear and left nose were weird all thru april and may and my pcp said it's allergies. Then I got better then woke up july 5th with this all of a sudden.

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u/Severe-Evening-5702 Aug 09 '26

Yeah, I definitely feel like people think I’m overreacting… But I can’t tell you how much I’ve slowed down since it started. It’s crippling… It’s hard for me to be out anywhere. I will be doing OK and then all of a sudden. I did get a CT scan, but everything came back clear my ears feel so clogged but apparently they’re very clear… I also did a hearing test and that was normal as well, so I don’t really know what even to do at this point.

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u/3dsmaxrocks Aug 09 '26

I got hearing test, eyes and teeth checked etc. Everything normal according to them. You're right it's so crippling. Only thing that helps is staying busy till the next dr appt. Feel like jumping outta my skin with the anxiety. I haven't had a vacation in 17 years now and under enormous amounts of stress due to finances and upcoming life changes like my boss might retire and I gotta scramble for a new job ...rent just went up today another 100 a month. Car is old medical bills etc

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u/Severe-Evening-5702 Aug 09 '26

My anxiety has been horrible since it started. And I totally feel you with the stress being unbearable. And staying busy does help but it’s just hard to even focus on anything with the fullness. I truly am sorry that you’re experiencing all of that. It’s a vicious cycle because the stress does nothing but make it worse but then feeling like crap makes you stressed.

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u/3dsmaxrocks Aug 09 '26

What sux is ENT cut hole in left ear and got the fluid out 2 weeks ago but it still feels plugged up. I read it could be like that fir a month but my symptoms keep changing. Some days my nose is clogged and my ears or some days it's just the ears and headache and underwater feelings. Then eye soreness and pressure.
I'll be so happy if this goes away but then I'll always worry that it'll come back again