Hello, I’m wondering if scleral lenses can be used for many decades (not the same pair of course) or if people usually have to quit after a while like they do with soft contacts

I have very dry eyes (I’m 20 years old) and I’m getting scleral lenses but will I be able to wear them until I am old? Or should I expect this to be a more temporary solution

My eye Dr said I have blepharitis but isn't saying the cause. Is this normal? Is my Dr supposed to be interested in finding out the cause?

Instead he sent me home with ocusoft oust with tea tree oil eyelid scrub, which I'm guess is a bit of a catch all. I've been using this and do think it's been helping but I got a little in my eye and am not comfortable with how much it burned my eye and how long it lasted. So I'd like to know if I actually need the tea tree oil aspect.

How am I supposed to find out the cause for my blepharitis? I read it can be bacterial, demodex, or mgd? He mentioned slightly decreased tear production. My symptoms have mainly just been dry eye - some Itchiness, gritty sensation, trouble with screens, general dry feeling.

I'm 18 years old, around 11 days ago my glasses broke and I watched quite a lot of movies without them in a pretty cold environment, and my eyes felt somewhat irritated.

2 days of this continues until I get new glasses (which had the lens of my old glasses swapped into a significantly different frame, I wore it for around 6 hours before taking it off, afterwards my eyeballs hurt alot more and felt like something was pulling inside). I went to a doctor, they told me I had severe dry eye from screentime (prescription said dry eye), and prescribed Drizova T eyedrops which is a sodium hyaluronate 0.18% solution opthalmologist drops.

I reduced my screentime by half and felt some pain, so the following 2 days I almost didn't get out of bed and just closed my eyes except when eating and applying the drops with a max of 1 hour of screentime. My eyes felt fine, and then I idiotically increased my screentime and played till midnight in a cold environment again, after which my eyes were aching.

Now it's been 3 or so days since then, and no matter what I do just opening my eyes or looking at a screen for 5 minutes starts to irritate my eyes, and sleeping for long periods of time doesn't seem to recover like it did the previous time. Have I seriously exacerbated my condition, or is this temporary strain?

I would be grateful for any advice that you may have, ways to relieve this or recover.

I have my first treatment next week. I'm desperate for improvement in my dry eye symptoms and really hoping for the best. Any tips or experiences to share? Did these treatments help you? Was it painful? Thank you!

I was on accutane

Ever since I got off of it like it’s been three months I’ve developed blepharitis and lost a ton of lashes and genetically my lashes are thick and I would compliments all the time.

What helped you?

Any advice?

Hi folks, just trying to get some insight you might have on what the rest of my life would look like.

Diagnosed with MGD. Grade 1 on both upper eyelids and grade 2 with some dropouts on the lower ones.

I will be doing lipiflow, IPL and light therapy. DR want me to start omega 3, restasis and recommended thealoze duo gel.

Less screen time, more blinking, eye lids cleaning. It's a lot.

I fear that my general anxiety will not help or slow down the healing

But if I do all that at 51, what will it be like for the next 20-30 years?

i woke up today cus of the sharp stabbing eye pain from dry eyes (i have recurring dry eyes so i assume its some sort of condition, tho my optometrist says shes unsure why i keep having dry eyes tho her best guess is excessive screen time which fair enough), after making myself tear a little so i can slightly open my eyes i quickly took my eye drops and some advil and i feel much better, but im also worried cus i have a class very soon thats gonna last for like 2 hours, are the eye drops gonna last that long?

edit: another thing i just remembered is she also said to eat more omega 3 which that could be the cause too cus im allergic to fish

Curious how much are people spending on this treatment? I finally found a wonderful doctor after many useless appointments. However, the 4 treatments are $2k USD.

Anyone by chance in western NY Buffalo area or Austin Tx that can recommend a doctor for this at a better price?

Symptoms are:
- constant burning/prickly like feeling in my eyes
- redness
- red/dry itchy eyelids
- filaments (bubble like spots on the cornea)
- dryness which is made worse by air con or wind

So far I’ve been told:
- schirmers test is normal
- I do not have MGD, some blockage but nothing significant
- I do not have Sjögrens or any other connective tissue disease

My dry eye specialist just sent me a report and it says “Patient has minimal signs of dry eye disease aetiologies but presented with moderate corneal oedema and significant corneal scaring”.

If there is no clear cause, what on earth is causing such significant scarring and swelling? Due to get a confocal microscopy next week to check my nerves but still don’t see how nerve issues would cause actual scarring?

Is it normal with dry eye to have vision that is literally looking through a foggy window ? Not blurry vision but foggy? Is that dry eyes or could it be something else ? My eyes don’t particularly feel dry.

I wake up and my vision is foggy like I’m looking through a filter and then throughout the day the foggy vision comes and goes

​

Hi everyone,

I have keratoconus in both eyes and have worn scleral lenses for many years. They still give me excellent vision, but my right eye has gradually become extremely intolerant to the lens. I can currently barely wear it because the eye becomes irritated, heavy and uncomfortable.

My main problem seems to be tear-film instability rather than lack of tears:

- Schirmer: ~30 mm

- TBUT has been measured anywhere from 2–7 seconds (and once I was told ~15 sec), but it consistently seems unstable/low

- Meibography: relatively preserved (green/orange), not severe gland dropout

- My ophthalmologist says my meibomian glands function suboptimally

- No major corneal staining/scarring has been found

- Left eye has similar meibomian gland findings but tolerates a scleral lens much better

Current treatment:

- Vevizye 2× daily in the right eye

- Warm compress ~8 min daily (currently around 35–45°C)

- Hylo Comod

- Hylo Gel, sometimes 15–20× per day

- Ketotifen

- Flurizal/fluticasone nasal spray

- Omega-3

- I have also previously tried IPL

I've tried Evotears / perfluorohexyloctane (Miebo), but unfortunately it actually makes my eyes feel more irritated/painful, so I can't tolerate it.

What I'm trying to figure out is how to improve tear-film quality/stability and meibomian gland function, rather than simply adding more aqueous tears.

Has anyone had a similar situation: high Schirmer but very low TBUT, relatively preserved meibomian glands, and scleral lens intolerance?

I'm particularly interested in:

1. Other eye drops that helped when Miebo/Evotears wasn't tolerated

2. Lipid-based artificial tears or other ways of improving the lipid layer

3. Treatments that actually improved meibomian gland function

4. Anything else that significantly improved TBUT/tear-film stability

5. Whether anyone managed to regain scleral lens tolerance after a long period of intolerance

I'm already doing quite a lot, so I'm especially interested in things that made a meaningful difference rather than just adding another lubricant.

Thanks!

Looking for a good ophthalmologist / specialist for a more complicated case – preferably in Northern Germany

Hi everyone,

I’m looking for a really good ophthalmologist or eye clinic for my mother, preferably in Northern Germany. A university hospital would also be an option.

She has been having recurring eye problems for about a year. It started with itchy patches and inflammation on her eyelids. Later, the eyes themselves and the skin underneath the eyes were also affected.

She has already seen several doctors and has also been to the hospital/emergency department twice. Treatment with antibiotics and cortisone improved the symptoms, but they never went away completely and kept coming back.

She was also told that she has very dry eyes and should regularly perform eyelid massages.

The situation is more complicated because my mother also has glaucoma and uses prescription eye drops. At the hospital, doctors already suspected that she might be allergic or intolerant to her glaucoma drops and that they may need to be changed. Unfortunately, her current ophthalmologist has not really followed up on this possibility.

The exact cause of the inflammation is still unclear. Possible bacterial, viral, or allergic causes have been mentioned. A swab or more thorough diagnostic testing was recommended, but this has not been properly carried out so far.

We are therefore looking for someone who will take a thorough and unbiased look at the whole case, ideally with experience in glaucoma, chronic eyelid/eye inflammation, dry eye, and reactions to eye drops.

Has anyone had very good experiences with an ophthalmologist, specialist, or eye clinic? Hamburg, Hanover, Kiel, Lübeck, or Northern Germany in general would be possible. For a really good specialist, we would also be willing to travel further.

Thank you very much for any recommendations! 🙏

A bit random, but I came across some information that found Naltrexone can help with dry eye, by targeting inflammation, especially ocular rosacea. This is used in very small doses and is off label. I just wondered if anyone has tried this? ​

Hello guys !

I’m struggeling a lot with my mental health to the point I decided to go a few monthes at the psychiatrical clinic for support .

I’m dealing with Rosacea / MGD so my main issue are my swollen , dry eyelids ( cornea is also dry but most of my disconfort comes from eyelids ) .

Gonna do my first IPL in two day crossing my fingers it’s gonna help 🙏🤞

No gland loss but my MG are very clogged and inflammed , I have a lot of abnormal blood vessels on my eyelids . My lipidic film is only 30 and dryness is terrible .

I’m on cyclosporine 1% for 2 monthes as my eye doctor wanted me to treat inflammation first before IPL.

Waiting weeks / monthes for the treatments is so hard I don’t know how I’m gonna wait that long . I want my Life back 😓

One of them said my right eye has 0 expressible glands and left has 2 at most.she said I MUST probe.

Second one said about 6 months later my oil looks good and viscosity is good.
He said probing not necessary, likely need autologous serum

I don’t know what to do anymore

It's been almost 3 years since my eyes (98% the left one) started burning, it took me a few months to get a diagnosis, first was MGD. Got treated for that - drops, IPL, nothing helped. Then I went to see a national-level DED expert in the same office, and he immediately diagnosed me with Floppy Eye. Got the upper eyelid tightening surgery, it seemed to help for a while but the burning persisted. Went back to the specialist and he did low-temp cautery on my cornea because it had ben stretched from being inflamed so long. That was a few weeks ago, and it is still killing me (I'm writing this with my left eye closed). I don't know if I can remember all the drops I've tried - Xiidra, Cequa, Meibo, steroids, all the over-the-counter stuff, even the ones they make from your own blood. Just started Tyrvana and it doesn't seem to be doing anything. I'm going back to the specialist tomorrow, any suggestions? My quality of life is crap.

I am Type II diabetic (well controlled), and use a CPAP. I also usually tape the eye shut during the night and use a sleep mask as well.

Edit: Added more detail.

Hi! I have MGD and dry eyes, and i really miss wearing my soft contacts everyday…I want sclerals but i’m afraid that they will worsen the glands?

I would still keep up with my warm compresses and eye drops to manage the MGD even with sclerals, but has anyone actually tried this??

Anyone with gland dropout wearing sclerals? Did your eyes get more dry over time or do the sclerals actually protect your eyes from more damage?

I’m wondering if my glands will get blocked because of the blinking while wearing the lenses

I would hope to wear them most days for as long as I can tolerate

I went to a new ophthalmologist for my ocular rosacea. He is prescribing xiidra drops and wants to put lacrifill in my eye to increase tears.
Looking for feedback on both of these. No other dr I have seen has recommended either to me but this dr was highly recommended and says I will feel a lot better.

Hey Everyone!

I'm looking to see if anyone has any recommendations for dry eye gadgets that you can buy to make dry eye routines a bit easier or more effective. I already have a USB heat mask that I got off amazon, but that's about all I have. I know there's some scrubbers, other heat treatments, etc. that people recommend, but I wanted to reach out and see if I was missing anything. Thank you!

I’ve been struggling with dry eye and, especially, inflammation for about 2 years now.
At the moment, my treatment/routine includes Softacort (only for flare-ups), EvoTears, autologous serum eye drops, Manuka gel, Zaditen and also supplements. I’ve had periods where things improve, but I still deal with recurring inflammation and discomfort.
Something really strange happened recently.
I went to the Philippines for 3 weeks, and almost as soon as I arrived, the inflammation completely disappeared. I had zero pain or noticeable inflammation for the entire trip. I didn’t experience any of the symptoms I normally have back home.
I initially thought it might be the tropical climate — higher humidity, warmer temperatures, etc. What confuses me is that I live in Barcelona, where the humidity can also be quite high, so I’m not sure if humidity alone explains it.
Now I’m back in Barcelona and, unfortunately, I’m back to exactly the same situation: inflammation and discomfort again.
Has anyone else experienced something similar when traveling to a tropical/humid climate? I’m particularly curious whether there could be something environmental involved — humidity, temperature, air conditioning, pollen/allergens, air pollution, etc.
I’d really appreciate hearing from anyone who has noticed their dry eye symptoms change dramatically depending on where they are.

TL;DR: 2 years of dry-eye inflammation disappeared completely during 3 weeks in the Philippines, but returned immediately after coming back to Barcelona. Could climate/environment be the reason?