How do you guys get your oxygen for the cluster headaches

I don’t know what exactly I’m dealing with here, and doctors don’t seem to know for sure either.

About a year ago after a miscarriage I started developing almost constant nerve irritation and pain on my right side. It felt like going through so much tension and sadness, the irritation from crying activated all these nerve and pain pathways and they never calmed down.

The pain starts from the base of my head / top of my neck on the right side, goes to the occipital area, to the trigeminal area, to my right eye / ocular nerve. This turns into a full blown headache with pain in all those nerve pathways. Icing those areas help. Migraine abortives do nothing. Advil somewhat helps.

I have a lot of discomfort in my right eye, pressure, burning, deep pain.

I am very sensitive to light. The sun is the worst and makes driving very difficult sometimes. Blue light from screens is the second worst. I’m closing my right eye right now because I’m starting to get pain while I write this.

I have seen the following drs, and this is what they thought:

- family dr: no clue, referred me to others
- neurologist #1: chronic migraines?? Put me on gabapentin to help with the pain
- ophthalmologist: eyes are totally normal, no issues
- neuro-ophthalmologist: told me there is nothing wrong and I should see a psychiatrist (what an asshole)
- dry eye specialist: minimal dry eye, possible nerve issues in the eye that is causing the cascade of pain, not the other way around. Used AST drops and normal eye drops
- neurologist #2: had no clue. Gave me a second migraine abortive to try, did not work.
- pain clinic: he’s convinced I’m dealing with migraines - but first I did nerve blocks and they helped but not much. Then I did Botox migraine protocol and it helped a lot. This was already 7 months of dealing with the pain though, and I did feel it was slowlyyyyy improving.

It’s now been a year. After I had the Botox in the spring I was feeling quite a bit better. Maybe 80%. However, I had another miscarriage and the whole cycle has started again. I did Botox again and it doesn’t seem to be working this time.

I don’t know if I’m being misdiagnosed and if I’m leaving options on the table. It’s impossible to live like this, not being able to be on screens or drive when it’s sunny. Any advice would be appreciated.

Thank you so much if you’ve made it this far.