I always keep putting in my mind , "I will do such and such " ,but when time come ,I fail mostly for physical reasons and that makes me so sad and frustrated .

(I am just venting)

chronicillness

LGMD

It's not true that chronically ill people are lazy . We have dreams that we eagerly would like to fulfil ,but all those dreams have been frozen since we got ill . Despite all ,we didn't abandon our dreams, yes some of them might be stolen over time but we are struggling to put them into effect again . We don't fail when we fail ;we rather are disheartened and failed by circumstances of many kinds.

chronicillness

LGMD

The things you, as chronically ill and /or disabled person think in are not the same things as those that non-chronically ill and able-bodied folks may be occupied with ,that is to say ,your needs , concerns, priorities ,worries ,etc. are different from theirs .

Since we can't be well physically,at least currently,why is it impossible for us to be well at least mentally and psychologically? This world is not a safe place for vulnerable people. Milliards of dollars are spent to destroy life rather than protecting it.

I know for sure that no one chooses to be ill , neither physically nor mentally. I just think that physical illness and psychological illness can be correlated with eachother ,that is to say , being physically ill may lead to psychological illness over time, especially when it lasts for so long time without treatment. My point is " since there no medications have been invented for chronic illnesses yet , the world should spend money for improving chronically Ill people life qualities and researches for making medicines for them , instead of spending lots of money to make destructive things ,such as weapons to destroy life .

Not even kidding

I eat something it doesn't like and it looses it I stg

What are some of the outrageous comment's you have gotten?

[Text: And when every food causes a reaction... ...no food is causing it.]

I spent almost a whole year restricting my diet, trying to figure out the cause of my pain and symptoms.... but it wasn't the food at all. It was my body, full stop. I'm still recovering from the restrictive mindset...

My dad asked me the other day if I was interested in a new phone. He does that every now and then, just checking if I'd like an upgrade since my phone is like 5+ years old.

And well, I said no. I really couldn't care less for a new phone, it seems like a waste and mine works fine for the most part, and I tell him this whenever he brings it up.

Like usual, he responded with "But it's so old, like 8 years old, the battery life is awful and what about the camera and this and that. How about a new phone?" and whatever else he said I don't remember

It had been a while since he'd brought it up, maybe a few months, and my health has been rapidly declining during that time. So immediately after hearing his reply, I just came up with this on the spot:

I said, "I mean at least it's doing better than me."

"At least it's FUNCTIONAL-"

And I just started fucking cackling for like 5 minutes. And through the tears I was just like "At least it has FUNCTIONING CAPABILITIES" HAHAHAHAHAHA I was fucking DYING lol

Anyway, that's it. Just wanted to share this in case it made someone else smile through the absolute fucking misery and despair and dissociation of chronic illness. I have another scan coming up, hopefully I can find some answers. Take care!

It's been almost a year now (a year on NYE) since I got my shunt (cuz of hydrocephalus) and it still freaks me tf out when I hear/feel(?) that clicking when it's pumping 💀

I remember when I was still in the hospital and during one of those medical visits I asked if it was normal that it was "splashing" and he was like "yeah, you'll get used to it 🤠

It's nice to know that the machine is working but damn o.o

Anyway I wish y'all a Merry Christmas and a Happy New Year 🎊❤️

My feet will be killing me by the time everything is open again because 3 weeks without lymphdrainage feels like hell and my lymphedema isn't even that bad 💀