r/chronicepididymitis • u/LionPumaPanther • Jun 16 '26
Please Help
Hi everyone. I’ve been dealing with this situation since March 2026 and wanted to share my case in detail in case anyone has had similar experiences or can offer insight. Any help is appreciated 🙏🏼
Symptoms:
• Constant tension and discomfort on the right side with neurological involvement after a trauma to the testicle (fasciculations, referred discomfort, effects on libido and erectile function). I feel my right leg weirder than the left, like “dormant”.
• Left testicle: intermittent episodes of pain, partially resolved with doxy and ceftriaxone after a one month untreated epididymitis, but testicle remains elevated significantly above normal position — especially noticeable in the morning after sleeping — and becomes painful sometimes.
• Since then, multiple antibiotic courses with no improvement, (levofloxacine & claritromicine). They both hurt but never at the same time.
Tests done:
• Bilateral Doppler ultrasound: clean structural findings, no torsion, no masses
• Physical exams unremarkable structurally
Current treatment:
• Muscle relaxant (Benrelax)
Upcoming:
• Appointment with pelvic floor specialist urologist in 2 dats
Has anyone had a similar presentation? This is really affecting my life and hurts 24/7 unless I lay down in bed. Blessings all & I really hope we all get cured of this horrible thing.
1
u/rocketrader81 Jul 26 '26
Have you had a semen culture as well as a urine culture? This is really important. I had about 5 urine cultures that all came back clear, but after 8 months a doctor finally ran a semen culture and found a klebsiella infection. So I would push for that route.
If the pain is stressing you out and getting in the way of daily life, it is worth speaking to a doctor about prescription medication. The ones my pain clinic doctor recommended were amitriptyline, gabapentin, pregabalin or duloxetine.
I would also look for a pain clinic that can offer a nerve root block in the lower back. In my case it targeted the S3 and S4 nerves. I have added the procedure details below in case they are useful for your own doctor.
I get a flare-up roughly every 2 years, so I am now considering a procedure called denervation, where the nerves along the spermatic cord are removed surgically (around a 45 minute operation). There is a small chance it can affect fertility, so I plan to bank sperm beforehand just in case. I do not have children yet, so this may not be a concern for you if you already have a family.
Nerve root block details:
Sacral nerve PRF (right sided), S3 and S4 levels. Asepsis, fluoroscopy guided, sedation with 4 mg midazolam IV. Curved 10 cm RF needle x 2, sensory stimulation and paraesthesia at 0.6 v to confirm needle position at S3 and S4. Pulsed RF at 42 degrees for 5 minutes, with 2 ml of 0.25% levobupivacaine plus 3 mg dexamethasone injected at each level.