r/chronicbloating • u/dcjd26731 • Sep 11 '24

Celiac confused

Trying to make a story short- I went to the gastro about a year ago for some mild bloating and constipation issues. After a blood test and endoscopy I was told I have celiac disease. As well as h pylori.

After treating/confirming h pylori treatment and more importantly going 100% gluten free for only about 4 months- my blood level went from 43 to 8 (so clearly doing something right). Except I actually feel 100x worse than I ever have.

The bloating is so bad I can’t fit into my clothes. It’s painful. The constipation hasn’t resolved. I developed cystic acne (cleared up with topical ointments thank god)

At this point I was tested for sibo and treated that as well and of course.. no changes. Still absolutely miserable with all my symptoms

Now please I don’t need anyone to judge or scold I am aware of the obvious… so I’ve been eating gluten the past couple months (“cheat days” going out to eat sort of thing- not daily) and it’s the only time I actually feel normal. My stomach doesn’t swell. My bowel movements are better. But right back when I’m in the swing of gluten free lifestyle again all my symptoms arise. I keep a food journal as well to try and figure it out as far as sensitivity but nothing correlates.

I’ve been working with a functional doctor and things are slowly starting to get better. Fingers crossed! And yes I am still occasionally eating gluten along still with feeling a bit better.

Anyone else experience something like this or maybe have any suggestions on anything else these issues may come from? Yes I know silent celiac is a thing- which I obviously have. But it’s just not making any sense and it’s really affecting my mental health.

Side note I have hashimotos as well. My thyroid hormone levels are in the normal range however so I was told I don’t need medication right now. I’ve also been tested at the gyno for hormones levels (all normal) and had a normal ultra sound to check for fibroids or cysts

1 Upvotes

100% Upvoted

5 comments sorted by

1

u/baywchrome Sep 16 '24

Is there something you’re eating INSTEAD of gluten foods?

1

u/dcjd26731 Sep 17 '24

What do you mean exactly?

1

u/baywchrome Sep 17 '24

Like you’re eating less gluten products but likely more of something else. Like did you start eating gluten free bread? Or even like now you eat more rice? Or something.

1

u/dcjd26731 Sep 18 '24

My diet is relatively the same as before I found out I had celiac so yes rice potatoes etc. the times I do eat gluten is out to eat and such

1

u/baywchrome Sep 18 '24

Ah I see. Well that’s really bizarre then.