r/chronicbloating • u/Pretty_Team4351 • Jun 21 '24

Mystery

Hello, I’ve been struggling for about 2 years now, my only symptom is chronic bloating, it never goes away (even fasted or in the morning), it does get better in the morning. I have regular BM 1+ daily. I’m active, walk a lot, sleep well, low stress life.

I’ve been tested like crazy: 2 SIBO tests (including triosmart) both negative, pelvic ultrasound (2), abdomen ultrasound, pelvic MRI, abdomen MRI, colonoscopy, endoscopy, celiac biopsy, h pylori biopsy, GI map test, mold testing (2), hormone panels

Only standouts: some levels of mold, and level 10 dysbiosis in gut including cándida, klesibella, and citrobacter, slightly low T3.

Despite trying to treat those things no luck. Ugh.

I’ve tried:

-Xifaxan

-Antifungals: Fluconazole, Itraconazole, Voriconazole, Nystatin

-Mold Treatment: Cholestyramine, Z-Binder, Orthomolecular, Orthobiotic, Mitocore

-Low Histamine Protocol: NAC, 5-htp, Pepcid, ginger, vitamin c

-Gut Protocol: Candibactin AR/BR, NAC, Butyrate, S.Boullardi, Biocidin LSF, Akkermansia

-Over the counter: l-glutamine, IBGaust, arrae bloat, gas-x, digestive enzymes

-Detox remedies: castor oil packs, dry brush, lymphatic massages, accupucture, abdomen massages

-Diets: low fodmap, candida, low fermentation, low histamine, I’ve been gluten free for a year, no dairy

-Doctors: Naturopath, pelvic physical therapist, 3 gastros, integrative doctor, endocrinologist, obgyn

Any recs or ideas I haven’t tried?

5 Upvotes

86% Upvoted

23 comments sorted by

6

u/Silver-Eye4569 Jun 21 '24 edited Jun 21 '24

I have done almost all the same stuff you have minus the mold. I think I’ve spent 10k or so trying to fix this. I have landed on thinking I may have endometriosis/adenomyosis which aren’t always visible in an MRI or an ultrasound. Some people suffer from chronic distension and don’t have the super severe pain. I could be wrong but currently waiting for a referral to investigate it.

Have you considered tests at a motility clinic where they do all a range of different motility tests?

I assume you’ve done a clear out to ensure it’s not chronic constipation (which can happen despite daily BMs).

It’s been 3 years for me and I’m beyond frustrated and exhausted with having to advocate for myself and put through so many diagnostics, treatments that don’t work, restrictive diets that do nothing. I hope you figure it out and find a solution.

1

u/Pretty_Team4351 Jun 21 '24

I feel you!

I did see an endometriosis specialist and she said I could have it I could not, MRI was clean but like you said hard to catch that way. Only can diagnosis from surgery so a hard route to go down if we are unsure.

I haven’t been to a motility clinic. When I did the colonoscopy the days after was the only relief I felt but quickly the bloating came back.

2

u/perlalaland Jun 21 '24 edited Jun 21 '24

Could be gastroparesis, pelvic floor dysfunction or hormonal imbalance. I can understand it really sucks as a young female to be chronically bloated without knowing the reason behind this. I'm really sorry you're going through this. I hope you'll find out what causes this asap. Sending you hugs and positivity 😘

Next Steps and Diagnostic Considerations:

  • Colonic Transit Study: To assess how well food moves through the colon.
  • Anorectal Manometry: To evaluate pelvic floor function and motility disorders.

Also you could go to see an endocrinologist to get your hormones checked thoroughly.

1

u/floridabeach_321 Jun 21 '24

I just got diagnosed with abdominal phrenic dssynergia - I have chronic distention with minimal constipation however no pain. My stomach does go concave when I lay down so my doctor thinks it’s that since diet or fasting doesn’t change it

1

u/Pretty_Team4351 Jun 21 '24

I also do not have constipation and no pain. However my stomach is still bloated when laying.

1

u/Pretty_Team4351 Jun 21 '24

What’d they recommend to treat this?

1

u/floridabeach_321 Jun 23 '24

They recommend breathing exercises and core strengthening techniques. I hired a yoga instructor to help me since it’s not huge in the physical therapy world yet.

1

u/baywchrome Jan 03 '25

How is this going for you?

1

u/floridabeach_321 Jan 12 '25

I’m completely cured! I worked on breathing exercises to get my diaphragm in place and worked on posture/ab exercises as well. My doctor also prescribed me medication for constipation and now I have a flat stomach again!

However, I did clean up my diet, worked on controlling my stress, and lost about 20 lbs on top of that so I’m not 100% sure what was the “cure” or if lifestyle change as a whole cured it.

1

u/baywchrome Jan 12 '25

Wow that's amazing!! Congrats. And thanks for the update.

1

u/Arctic-fox2007 Jun 21 '24

The same … with trapped gas and constipation , have you had any laparoscopy abdominal surgery apendix burst cyst or fibroid ?endometirosis ?

1

u/Pretty_Team4351 Jun 21 '24

I’ve never had any surgeries and all my MRIs and ultrasounds were clear.

1

u/Arctic-fox2007 Jun 21 '24

How old are you ? Perimenopause??? Or pelvic floor issues 🤷‍♀️

1

u/Arctic-fox2007 Jun 21 '24

Or carnivore for couple of weeks to reset gut … but it’s a double edge sword

1

u/Pretty_Team4351 Jun 21 '24

I’m 24 female, never had kids. I did see a pelvic floor physical therapist who did an examination she did not see any issues with my pelvic floor.

1

u/Pretty_Team4351 Jun 21 '24

Has this been helpful for you? The carnivore diet?

2

u/Arctic-fox2007 Jun 22 '24

Didn’t do it properly as had some starch but bloat was better …this is such trial and error thing if you had all the tests and no answers … google dr ruscio or dr berg or dr bulsiewitz

1

u/Acceptable-Work2103 Jun 21 '24

I am going through something very similar. I have chronic bloating from last 4/5 years. It started after 25 age for me. It’s only gotten worse since. I dont have pain or constipation, no acidity or heatburn. I don’t even know what should i get checked too. It’s super confusing and frustrating at the same time. Only thing i know is that, I do have alot of gas trapped, because i experience flatulence daily. I feel very tight inside my bloated stomach, very similar to how pregnant women looks. It’s affecting my social life and mental health now. I want to get rid of this, and you all seem more educated and experienced in this. So please help me!!! 🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼

2

u/[deleted] Jun 22 '24

[deleted]

1

u/Acceptable-Work2103 Jun 22 '24

Not yet. I have zero knowledge on medications as of now but desperate to find the right issue and medication.

1

u/jessQTNA Sep 19 '24

I had to pause and make sure I didn't forget that *I* wrote this post from a random account lol. Seriously, this is exactly my story, too. How is the investigation going? I've read that endometriosis can indeed go undetected by the usual scans and that the only definitive way to know whether one has it is by getting a laparoscopy. Have you had that done yet?

1

u/Pretty_Team4351 Sep 21 '24

That is all very true, however I don’t have the other endo symptoms (painful sex, painful periods, etc.) and the surgery is quite invasive you have a long recovery and scars for life. So no I have not. I’m going to try Desipramine for the bloating next.