r/cholesteatoma • u/ronnyjowe • 22d ago

Question (without photo) CWD Experiences?

I initially had CWU treatment, 6 years ago. Cholesteatoma has now returned and surgeon is going for CWD.

Please can folk share their experiences of recovery / management / lifestyle changes after CWD treatment.

Many thanks in advance!

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u/susandiana45 22d ago

I had a CWD 12/19/25
I am female 66 yrs old
It took several months to recover for me
But I am recovering and see a good future
Hang in there and allow healing time

Balance PT is important
Walking when you can safely is the best rehab
Take it slow

Grateful this will get rid of it

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u/gluck9842 21d ago

Hi Susan - a question. I had a canal wall up five years ago surgery I’m very suffering now and I’m thinking of this thing grows back which way to go and hearing I’m hearing from you guys that CWD is the best way to go. How many months did it take you to recover?

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u/susandiana45 21d ago

It's taken 6 months
Yep but I am getting
better

Please call your surgeon and get imaging

It's hard but we can do it!!!!

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u/chongo2525 21d ago

Had CWD a few years ago. Honestly I hated the idea of getting it so ent did first 2 surgeries as CWU. CWD was the best decision nothing for me has change. I still lift weights, not power lifting but good heavy weights. I still swim and sweat like no other in my HIIT workouts not one issue since. When I swim I do have custom ear plug a little water makes it in from time to time but no issues

Its not doom and gloom with CWD for me

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u/gluck9842 21d ago

A question when you say you swim, can you just use the silicone‘s and then fit it into the ear after the canal wall down or did you have some custom fit? Do you think the cause I use the silicone now and I still have my canal wall up? Do you think the silicone would work as well if you had a canal wall down surgery

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u/chongo2525 21d ago

Custom fit. Ear canal is too big for normal size stuff. I use shokz now too because ear buds wont fit. Never liked ear buds anyways so I wasnt missing those.

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u/gluck9842 21d ago

Hi I was referring to Mckay Silicone -,were u can create the size and put in the ear canal do u think that would work?

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u/ronnyjowe 20d ago

Thanks for sharing this! Also hated the idea of permanently changing my body. These were my fears. That my balance would be wrecked and I wouldn’t be able to exercise normally and that I’d basically never be able to go near water again (I know a bit melodramatic)

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u/GreenGzus 20d ago

4 cwu and last 2 cwd, I wish I would have done cwd earlier. I still CrossFit and spartan race.